Hi, I wondering if any of you also have interstitial cystitis. I have it and it seems that I have food related problems with that as well - of course it is a bunch of different foods that have nothing to do with gluten, like, well, soy and red wine to name a couple...(I have read that this is "normal" for people with IC). I got the interstim implant and that has helped a great deal, but still have issues with it when i eat or drink something "wrong." Anyway, I find it difficult to cut out gluten (dairy is a rough one too), and everything that affects my IC - there is a list of foods that are bad for IC and it includes almost everything one can imagine, of course except bread - ha, how is that for fun! If you can sympathize, please post so i don't feel so lonely. Of course, I never really feel lonely - this is such a great site!
QUOTE(mvaught @ Jan 5 2006, 09:17 AM) 
Hi, I wondering if any of you also have interstitial cystitis. I have it and it seems that I have food related problems with that as well - of course it is a bunch of different foods that have nothing to do with gluten, like, well, soy and red wine to name a couple...(I have read that this is "normal" for people with IC). I got the interstim implant and that has helped a great deal, but still have issues with it when i eat or drink something "wrong." Anyway, I find it difficult to cut out gluten (dairy is a rough one too), and everything that affects my IC - there is a list of foods that are bad for IC and it includes almost everything one can imagine, of course except bread - ha, how is that for fun! If you can sympathize, please post so i don't feel so lonely. Of course, I never really feel lonely - this is such a great site!
All I can say is YES YES YES! I also have that problem and it's horrible, isn't it? To have to deal with gluten intolerance ON TOP OF the horrible bladder issues! May I ask what foods bother you exactly. I've noticed that I can't have coffee, (even decaf.), any alcohol these days, sugar in processed or "fake" foods, chocolate and salt. Does salt effect you? Also, it's worse a couple days before my period so I have to drink TONS of extra water (on top of the tons I already drink!).........does this happen for you too?
It's funny because I was just going to bring this topic up! So don't worry, you are def. NOT alone!
QUOTE(danikali @ Jan 5 2006, 10:49 AM)
All I can say is YES YES YES! I also have that problem and it's horrible, isn't it? To have to deal with gluten intolerance ON TOP OF the horrible bladder issues! May I ask what foods bother you exactly. I've noticed that I can't have coffee, (even decaf.), any alcohol these days, sugar in processed or "fake" foods, chocolate and salt. Does salt effect you? Also, it's worse a couple days before my period so I have to drink TONS of extra water (on top of the tons I already drink!).........does this happen for you too?
It's funny because I was just going to bring this topic up! So don't worry, you are def. NOT alone!
It's funny because I was just going to bring this topic up! So don't worry, you are def. NOT alone!
Hi there - partner in IC! =) Glad we found each other. Well, I have found that, yes, alcohol affects it - especially red wine (though honestly sometimes I just bear with it for some rum). it is wierd, because it seems that some foods/drink affect me in certain ways and others affect me in others - for example, 2 glasses of red wine means frequency and urgency and pain, while 2 rum drinks (just go with it since i am already on this example) will only cause the frequency (and maybe minor urgency, but not too bad). so, i guess i have found that foods affect me categorically. Soy Soy Soy is bad bad bad, although I have been able to tolerate a very small amount (like once a month or so) an a very infrequent basis. Orange juice (though the Low Acid kind seems better), vinegar, chocolate for sure. I have the coffee problem as well (though decaf seems to only affect the frequency in small, infrequent amounts). Hmmm, I haven't though of testing sugar - my husband has a carnitine deficiency and cannot have sugar - so i eat sugar free because of him - though I have found that nutra-sweet affects me where as Splenda seems better. I am also unsure about salt - since I put it in everything, but I do think that lots of salt does seem bad (now that I think of super salty foods - yes, I think they do). Juices in general are hard (cranberry juice - especially!) but the pear juice seems ok. Oh, and finally tomatoes and anything that contains them, they cerainly affect me. And I am the same as you, before and around my period is torture - does the pain and irritation also seem to shoot through your legs? It is really awful - i always dread the days before my period for this reason. Have you seen a doctor about your IC? I have the interstim implant and it has really changed my life - though obviously not a complete cure - but the day to day is better (and sex is not so awfully painful). I would say that I have had about a 70% improvement as long as I don't eat too badly. For me, it was worth it, because even cutting out the "bad" foods was not helping (and I couldn't sleep, having to pee literally over 50 times a night and it was very painful - but never did I have an infection). anyway, as I said, it was worth it for me, so there is some hope for treatment =). Let me know what other foods affect you - because I sometimes don't think about things like sugar and salt - I wonder what else I am missing.
-Michelle
Wow! You are practically explaining my bladder to a T! Yes, I get shooting pains in my legs before and during my period and I also get a weird, 'pulling' feeling on my urethra. I don't really know how to explain it, but it's not a burning, although I do get that from time to time, but it feels like something is pulling it! I know, weird! I also notice that it happens very frequently if I've eaten sugar. I used to have candy like 2 times a day, like sweetarts, or neccos, or something. Hm....I think I named all of the things that trigger my bladder already, but now I'm starting an elimination diet to find out what foods are bothering the other parts of my body! 
I think I've learned to control the cystits for the most part from my diet changes and drinking TONS of water instead of soda or coffee, except I feel like there are no connections to food and the symptoms I get around my period......maybe the longer I am gluten free and I heal, these symptoms will go away too......I hope.
May I ask how long you have been gluten free? Hopefully we are just dealing with this because of the years of eating gluten and we'll be completely cured eventually. What do you think? Also, do you get a really bloated stomach when your symptoms are at their worst? It's horrible how there's the gluten thing, which if I eat, I look pregnant, and then there is this annoying bladder thing that also makes me blow up like crazy! Ugh!
Oh and yes, of course, ALL JUICE, ESPECIALLY CRANBERRY AND ORANGE JUICE are off limits for me.
I think I've learned to control the cystits for the most part from my diet changes and drinking TONS of water instead of soda or coffee, except I feel like there are no connections to food and the symptoms I get around my period......maybe the longer I am gluten free and I heal, these symptoms will go away too......I hope.
May I ask how long you have been gluten free? Hopefully we are just dealing with this because of the years of eating gluten and we'll be completely cured eventually. What do you think? Also, do you get a really bloated stomach when your symptoms are at their worst? It's horrible how there's the gluten thing, which if I eat, I look pregnant, and then there is this annoying bladder thing that also makes me blow up like crazy! Ugh!
Oh and yes, of course, ALL JUICE, ESPECIALLY CRANBERRY AND ORANGE JUICE are off limits for me.
I also have had bladder problems, even though it was never diagnosed as anything but an irritated bladder or bladder infections.
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
QUOTE(danikali @ Jan 12 2006, 03:35 PM)
Wow! You are practically explaining my bladder to a T! Yes, I get shooting pains in my legs before and during my period and I also get a weird, 'pulling' feeling on my urethra. I don't really know how to explain it, but it's not a burning, although I do get that from time to time, but it feels like something is pulling it! I know, weird! I also notice that it happens very frequently if I've eaten sugar. I used to have candy like 2 times a day, like sweetarts, or neccos, or something. Hm....I think I named all of the things that trigger my bladder already, but now I'm starting an elimination diet to find out what foods are bothering the other parts of my body!
I think I've learned to control the cystits for the most part from my diet changes and drinking TONS of water instead of soda or coffee, except I feel like there are no connections to food and the symptoms I get around my period......maybe the longer I am gluten free and I heal, these symptoms will go away too......I hope.
May I ask how long you have been gluten free? Hopefully we are just dealing with this because of the years of eating gluten and we'll be completely cured eventually. What do you think? Also, do you get a really bloated stomach when your symptoms are at their worst? It's horrible how there's the gluten thing, which if I eat, I look pregnant, and then there is this annoying bladder thing that also makes me blow up like crazy! Ugh!
Oh and yes, of course, ALL JUICE, ESPECIALLY CRANBERRY AND ORANGE JUICE are off limits for me.
I think I've learned to control the cystits for the most part from my diet changes and drinking TONS of water instead of soda or coffee, except I feel like there are no connections to food and the symptoms I get around my period......maybe the longer I am gluten free and I heal, these symptoms will go away too......I hope.
May I ask how long you have been gluten free? Hopefully we are just dealing with this because of the years of eating gluten and we'll be completely cured eventually. What do you think? Also, do you get a really bloated stomach when your symptoms are at their worst? It's horrible how there's the gluten thing, which if I eat, I look pregnant, and then there is this annoying bladder thing that also makes me blow up like crazy! Ugh!
Oh and yes, of course, ALL JUICE, ESPECIALLY CRANBERRY AND ORANGE JUICE are off limits for me.
Hi again Danielle - I definately get the bloating as if I am pregnant too but I haven't been able to differentiate if the bloating comes from gluten or bladder issues, regardless - isn't it awful?! I get that pulling feeling too, not a burning but pressure or something. I haven't been gluten free long, actually the way that I discovered that I have celiac disease is by going gluten free and noticing that it helped. So, I went back on it (confirmed that it made me feel horrible) and got my bloodwork today. I did notice that when I was off of the gluten, my bladder seemed better, so I really do think that when our bodies have had enough time to heal that it will be much better. (By the way, things that contain citric acid and i think anything that is acidic affects the bladder, also apparently anything processed or containg preservatives can be bad). Again, I haven't been off gluten for long, but when I was, i did notice a difference - but still no coffee. I don't really eat candy or sweets, so I guess that is why I haven't made a sugar connection.
Here is link to IC support diet stuff - it is pretty helpful, it has a list of various food (again, some you'd never think of) that are good, bad and inbetween...
http://www.ic-network.com/handbook/diet.html#topfive
Like celiac disease, IC is apparently auto-immune related, so those of us that also have other auto-immune problems, it makes sense that these are all connected.
QUOTE(Ursula @ Jan 12 2006, 04:40 PM)
I also have had bladder problems, even though it was never diagnosed as anything but an irritated bladder or bladder infections.
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
IC is really hard to diagnose, but I was diagnosed with it...from my understanding all acids (especially those that are in man-made form such as citric acid) are bad for those with IC, so my assumption is that is probably the case....I haven't ever tried the aspirin test, but I do know foods that affect me and that even eliminating all of those did not help (as well as trying the bladder meds that are available - seen the gotta go commercials?).
The implant, for me was the way to go as I am only 30 and was completely incontinent, etc (and this is something I have always had, as long as i could remember, but it had gotten worse over the years. I will try the aspirin, test, though after looking at the thread you sent- it seems that there is a relation to asthma and sinus problems, which I really don't seem to have, nor do I seem to have sensitivity to things like perfumes - or at least not that i know of, but I am getting more and more confused in general with what is wrong with me and my regular doctor (which I have to see before specialists) is really clueless (and not a good doctor).
If you continue to have problems with your bladder and they seem unbearable, you should try to find someone that is very familiar with IC. There is no known cure for it (the implant I have is only something that stimulates the nerve to make me not be so bothered by it - but also not a cure), including dietary changes. As I said, it took years to get that diagnosis for me (and even many urologiest are unfamiliar with it) Check out this site for some info on it:
http://www.ic-network.com/
I was lucky to find a great, sympathetic urologist that says he is convinced all of my (and I am sure this applies to all of us with celiac disease) problems are related - specifically auto-immune related. he described it as my body being "hard wired" differently and that all of the same group of people have the same things. I am sure that he is right, since so many of us have other problems aside from celiac disease. Anyway, I hope your Aspirin test gives you some answers! Let us know how it goes!
-Michelle
Oh and when you look at the food list - they mention a product called Prelief, I 've tried this stuff and it actually does help the bladder - so it is worth a shot (of course, I'm not sure if the product contains gluten or not - so something to check on). Fortunately, the list, though long and frustrating is helpful in finding what things bother you specifically. I didn't do a total emlination diet, because I found that the things that bother me - let me know, so I just try to listen to my body as I eat (novel concept, eh? - lol)
-Michelle
-
-Michelle
-
Wow! Thanks for all of the info. I never got an official diagnosis of IC either, but I know I have it because I researched it like crazy for about 4 months straight. Then when I went to see the Urol., she had no idea what IC even was (like you mentioned) and told me that I just have "Irritable Bladder." The same dumb excuse that GI's give when they can't find anything with your colon. It's all bull, if you ask me 
Anyway, how did your tests come out for Celiac, Michelle? And how about the asprin test Ursula?
It's funny because I've been on and off Pepto Bismol every time I get glutened. Well, I had some yesterday and at night, for like 5 hours, I couldn't breath right. My tight was chest and I could only take little breaths. Then I read the back of the Pepto Bismol bottle and read "Don't take if you are allergic to salicylates. It made me think. But then again, I've never had this problem before while taking Pepto, so maybe it was something else all together.
And congrats on your PhD. Michelle. I see it in your signiture.
Anyway, how did your tests come out for Celiac, Michelle? And how about the asprin test Ursula?
It's funny because I've been on and off Pepto Bismol every time I get glutened. Well, I had some yesterday and at night, for like 5 hours, I couldn't breath right. My tight was chest and I could only take little breaths. Then I read the back of the Pepto Bismol bottle and read "Don't take if you are allergic to salicylates. It made me think. But then again, I've never had this problem before while taking Pepto, so maybe it was something else all together.
And congrats on your PhD. Michelle. I see it in your signiture.
Actually, I just looked over the food list for salicylatyes, and I must have this problem! Every single thing in the Bad List bothers me, and I'm having this breathing problem right now which is probably because I kind of overdosed on Pepto yesterday and on the back of it it said "DO NOT TAKE IF YOU ARE ALLERGIC TO SALICYLATYES"
WOWWWWWWWWW
WOWWWWWWWWW
Hey Danielle!
I am still waiting for my celiac test results...Hopefully next week sometime. My doctor was being such an ass yesterday, becuase he has spent all summer long doing colonoscopies, endoscopies, capsule endoscopy, barium, etc. and came up with nothing - although when he did the colonoscopy, my colon was so inflamed (colitis, espohogitis and gastritis) that he thought i had crohn's (how dare he comes to the conclusion nothing is wrong), so he reluctantly did the bloodwork yesterday. Anyway, we'll see, but I am going of gluten again anyway (began today).
I really don't know about me and the salicylates. I am going to try the aspirin test, but I want to be gluten free and feeling better first so that can actually tell a difference - my body is so run down because I ate a bunch of gluten knowing I was going to have the bloodwork done - ughh. Anyway, after I feel better, I'll try the aspirin - however, I don't recall ever having a reaction to pepto or aspirin in the past (and don't have the breathing problems you memtion).
Yeah, you are right about the IC. I was really lucky to get a diagnosis of having it, but honesty it was only because my doctor studies it specifically (he just happened to do this - I had no idea). When I went to my first visit - I told him my "story" and he immediately before doing tests, said," I know what you have"...Then he ran all of the tests (cystoscpoies - ouch, MRI, etc) and confirmed the diagnosis. I think the other thing that had him convinced was my age....only 29 when I went to him and as he said "Whenever I see someone as young as you with this many problems, it is almost always IC."
I think that I am driving my husband crazy, I'm so moody from being on the gluten (which he said that when i started back on it - he can tell the difference in me immediately). I'm lucky, because he is really supportive, but boy do I feel moody. And, yes, I am sure you can imagine the stress we are both under trying to finish our doctorates at the same time (both working on dissertations and preparing to take comprehensive exams). We are happy about all of that - Thanks for your good wishes!
Anyway, sounds like you definately have an answer with the salicylates. Maybe between cutting out those and gluten and whatever bothers you on the IC list, you will be like normal again (of course, not sure what you are left with - water??)
-Michelle
I am still waiting for my celiac test results...Hopefully next week sometime. My doctor was being such an ass yesterday, becuase he has spent all summer long doing colonoscopies, endoscopies, capsule endoscopy, barium, etc. and came up with nothing - although when he did the colonoscopy, my colon was so inflamed (colitis, espohogitis and gastritis) that he thought i had crohn's (how dare he comes to the conclusion nothing is wrong), so he reluctantly did the bloodwork yesterday. Anyway, we'll see, but I am going of gluten again anyway (began today).
I really don't know about me and the salicylates. I am going to try the aspirin test, but I want to be gluten free and feeling better first so that can actually tell a difference - my body is so run down because I ate a bunch of gluten knowing I was going to have the bloodwork done - ughh. Anyway, after I feel better, I'll try the aspirin - however, I don't recall ever having a reaction to pepto or aspirin in the past (and don't have the breathing problems you memtion).
Yeah, you are right about the IC. I was really lucky to get a diagnosis of having it, but honesty it was only because my doctor studies it specifically (he just happened to do this - I had no idea). When I went to my first visit - I told him my "story" and he immediately before doing tests, said," I know what you have"...Then he ran all of the tests (cystoscpoies - ouch, MRI, etc) and confirmed the diagnosis. I think the other thing that had him convinced was my age....only 29 when I went to him and as he said "Whenever I see someone as young as you with this many problems, it is almost always IC."
I think that I am driving my husband crazy, I'm so moody from being on the gluten (which he said that when i started back on it - he can tell the difference in me immediately). I'm lucky, because he is really supportive, but boy do I feel moody. And, yes, I am sure you can imagine the stress we are both under trying to finish our doctorates at the same time (both working on dissertations and preparing to take comprehensive exams). We are happy about all of that - Thanks for your good wishes!
Anyway, sounds like you definately have an answer with the salicylates. Maybe between cutting out those and gluten and whatever bothers you on the IC list, you will be like normal again (of course, not sure what you are left with - water??)
-Michelle
Thanks, Dani and Michelle for your support. Dani, I am glad I may have helped you find what may be causing your problems on top of gluten.
I don't think I have IC. I have been somewhat incontinent since having a cesarean section in 1981, because the catheter gave me a bladder infection. I've had recurring infections, irritation and stress incontinence ever since. And two more C-sections, and my bladder being ripped during a hysterectomy and having to wear a catheter for two weeks (to give the bladder a chance to heal after it was repaired) four years ago didn't help any. But my symptoms aren't really like IC.
Right now my bladder is giving me problems again, and I have burning. But I think that is because I ate eggs two days ago!
I decided to test the lectin theory first. I ate rice on Monday, which gave me a terrible stomach ache and just about knocked all my energy out of me. I woke up at 3:00 PM the next afternoon, and thought my clock must have stopped! I also got terrible back pain.
But then I read that somebody said that rice dream isn't gluten free, and had put some into something I baked the day before. Meaning it could have been gluten.
So, I ate some scrambled eggs two days ago, and they made my hands, feet, knees and back ache, as well as a headache the next day, and today I have diarrhea and that burning in my urethra that I haven't had for quite a while (to be accurate, since I went off gluten and lectins). I also feel like I have to go to the bathroom all the time, even though I know I don't really have to. I was hoping I could put the lectins back into my diet, but no such luck. At least now I know for sure.
I will try the Aspirin tomorrow (and hopefully I won't be sick for the rest of the weekend). I really don't want to be allergic to salicylates, too! Now that I found out that chocolate is a huge problem as well (my favourite treat in the world) I really want to be able to at least eat lots of fruit again!
I'll keep you updated on my experiments (I wished I could use a different guinea pig, though).
Ursula
I don't think I have IC. I have been somewhat incontinent since having a cesarean section in 1981, because the catheter gave me a bladder infection. I've had recurring infections, irritation and stress incontinence ever since. And two more C-sections, and my bladder being ripped during a hysterectomy and having to wear a catheter for two weeks (to give the bladder a chance to heal after it was repaired) four years ago didn't help any. But my symptoms aren't really like IC.
Right now my bladder is giving me problems again, and I have burning. But I think that is because I ate eggs two days ago!
I decided to test the lectin theory first. I ate rice on Monday, which gave me a terrible stomach ache and just about knocked all my energy out of me. I woke up at 3:00 PM the next afternoon, and thought my clock must have stopped! I also got terrible back pain.
But then I read that somebody said that rice dream isn't gluten free, and had put some into something I baked the day before. Meaning it could have been gluten.
So, I ate some scrambled eggs two days ago, and they made my hands, feet, knees and back ache, as well as a headache the next day, and today I have diarrhea and that burning in my urethra that I haven't had for quite a while (to be accurate, since I went off gluten and lectins). I also feel like I have to go to the bathroom all the time, even though I know I don't really have to. I was hoping I could put the lectins back into my diet, but no such luck. At least now I know for sure.
I will try the Aspirin tomorrow (and hopefully I won't be sick for the rest of the weekend). I really don't want to be allergic to salicylates, too! Now that I found out that chocolate is a huge problem as well (my favourite treat in the world) I really want to be able to at least eat lots of fruit again!
I'll keep you updated on my experiments (I wished I could use a different guinea pig, though).
Ursula
QUOTE(danikali @ Jan 13 2006, 11:27 AM)
Actually, I just looked over the food list for salicylatyes, and I must have this problem! Every single thing in the Bad List bothers me, and I'm having this breathing problem right now which is probably because I kind of overdosed on Pepto yesterday and on the back of it it said "DO NOT TAKE IF YOU ARE ALLERGIC TO SALICYLATYES"
WOWWWWWWWWW
WOWWWWWWWWW
danielle - good news...Prelief is gluten free. Here is the email I got:
Yes, Prelief is gluten free.
Betty Corson
Customer Service
1-800-994-4711
Anyway, this stuff really does help - you should try it. I get it from Walgreens, and it is with the stomach meds (usually right next to heartburn stuff).
-Michelle
thanks for the link to this thread, i apparently just overlooked it while searching around..........my experience with IC isn't so much the urgency to go, but frequency and issues with completion....but the painful sex is the worst part for me..
all of this is so frustrating after going through the surgery for endometriosis only to find out it was all for nothing
all of this is so frustrating after going through the surgery for endometriosis only to find out it was all for nothing
I'm so glad I foumd this thread! The information you ladies have posted have answered a lot of my questions. I'm scheduled for testing of my bladder and uterus on Feb.2. Your symptoms are the same as mine. My bladder issues have gone from bad to worse! I always had to pee frequently but lately it's every 10 minutes. I'm not kidding. My drs say it may be fibroids or endometriosis but after reading your experiences, it may be IC. On my birthday I had wine, and I had to pee so many times, my friends started to laugh...I couldn't help it, it was really bad!! I went probably 15 times in 4 hours. Then my hubby took me flying and i had to have him land within 20 minutes to use the bathroom.Very inconvenient! That was the last straw for me, and I booked an appt. Anyways, I think I'll watch my diet and see if I notice a difference with my bladder. Thanks for the link on the diet...very useful! I also get bloated and experience burning. Lately, painful sex has become a symptom as well. Any other info you'd like to share would be appreciated! 
Charlene
That was the last straw for me, and I booked an appt. Anyways, I think I'll watch my diet and see if I notice a difference with my bladder. Thanks for the link on the diet...very useful! I also get bloated and experience burning. Lately, painful sex has become a symptom as well. Any other info you'd like to share would be appreciated! Charlene
QUOTE(traveljunkie @ Jan 21 2006, 10:23 PM)
I'm so glad I foumd this thread! The information you ladies have posted have answered a lot of my questions. I'm scheduled for testing of my bladder and uterus on Feb.2. Your symptoms are the same as mine. My bladder issues have gone from bad to worse! I always had to pee frequently but lately it's every 10 minutes. I'm not kidding. My drs say it may be fibroids or endometriosis but after reading your experiences, it may be IC. On my birthday I had wine, and I had to pee so many times, my friends started to laugh...I couldn't help it, it was really bad!! I went probably 15 times in 4 hours. Then my hubby took me flying and i had to have him land within 20 minutes to use the bathroom.Very inconvenient! That was the last straw for me, and I booked an appt. Anyways, I think I'll watch my diet and see if I notice a difference with my bladder. Thanks for the link on the diet...very useful! I also get bloated and experience burning. Lately, painful sex has become a symptom as well. Any other info you'd like to share would be appreciated!
Charlene
That was the last straw for me, and I booked an appt. Anyways, I think I'll watch my diet and see if I notice a difference with my bladder. Thanks for the link on the diet...very useful! I also get bloated and experience burning. Lately, painful sex has become a symptom as well. Any other info you'd like to share would be appreciated! Charlene
Hi Charlene
You sound so much like me it is ridiculous. i insisted on going to an urologist - you should try (everyone also tried to blame the bladder problems on endo - which i really do have but the ic is also there). if you do see one - be sure it is one very very familiar with ic - many urologists are not familiar. my doctor luckily was great! you should totally try the diet and the drugs - but with the severity, the implant may really help you - it really helped me, changed my life (still have problems - but i can take a five minute carride without worrying about peeing my pants and sex is soo much better). i'm not sure where you live - i am in south florida - if you'd like the name of my doctor (he may be able to reccommend someone in your area). anyway, it is a drastic mesure for comfort, i know (and soo many people don't understand how bad it feels), but i have found it worth it and i would do it over and over again if i had to. anway, check it out - the company that makes the devide is called medtronics and they have their own website. (plus the IC network hasinfo on it)
i hope this helps!
-michelle
Hi Michelle,
Thanks for the reply! My dr will refer me to a urologist regarding my problems!
After reading this thread, I've researched online, and found a lot of similarities with my symptoms. I'ts something worth investigating. I live in Canada, so it would be a no go to visit your doc, but thanks for the offer.
It's very encouraging hearing how much you've improved. I will test the diet theory out and I'll let you know if I notice any improvement. I know caffeine is a huge trigger for me. I literally could pee every 2 minutes after one cup of tea. A funny story...just today I went to a clients house to check on the construction being done and I HAD to go NOW, but there were no doors on all the bathrooms. I didn't care, and said no one come upstairs. I couldn't have held it if you paid me! UGH!! I want to get this figured out soon, and quit suffering this embarressing problem. Thanks for the listening!
Charlene
Thanks for the reply! My dr will refer me to a urologist regarding my problems!
After reading this thread, I've researched online, and found a lot of similarities with my symptoms. I'ts something worth investigating. I live in Canada, so it would be a no go to visit your doc, but thanks for the offer. It's very encouraging hearing how much you've improved. I will test the diet theory out and I'll let you know if I notice any improvement. I know caffeine is a huge trigger for me. I literally could pee every 2 minutes after one cup of tea. A funny story...just today I went to a clients house to check on the construction being done and I HAD to go NOW, but there were no doors on all the bathrooms. I didn't care, and said no one come upstairs. I couldn't have held it if you paid me! UGH!! I want to get this figured out soon, and quit suffering this embarressing problem. Thanks for the listening!
Charlene
QUOTE(traveljunkie @ Jan 22 2006, 06:56 PM)
Hi Michelle,
Thanks for the reply! My dr will refer me to a urologist regarding my problems! After reading this thread, I've researched online, and found a lot of similarities with my symptoms. I'ts something worth investigating. I live in Canada, so it would be a no go to visit your doc, but thanks for the offer.
It's very encouraging hearing how much you've improved. I will test the diet theory out and I'll let you know if I notice any improvement. I know caffeine is a huge trigger for me. I literally could pee every 2 minutes after one cup of tea. A funny story...just today I went to a clients house to check on the construction being done and I HAD to go NOW, but there were no doors on all the bathrooms. I didn't care, and said no one come upstairs. I couldn't have held it if you paid me! UGH!! I want to get this figured out soon, and quit suffering this embarressing problem. Thanks for the listening!
Charlene
Thanks for the reply! My dr will refer me to a urologist regarding my problems!
After reading this thread, I've researched online, and found a lot of similarities with my symptoms. I'ts something worth investigating. I live in Canada, so it would be a no go to visit your doc, but thanks for the offer. It's very encouraging hearing how much you've improved. I will test the diet theory out and I'll let you know if I notice any improvement. I know caffeine is a huge trigger for me. I literally could pee every 2 minutes after one cup of tea. A funny story...just today I went to a clients house to check on the construction being done and I HAD to go NOW, but there were no doors on all the bathrooms. I didn't care, and said no one come upstairs. I couldn't have held it if you paid me! UGH!! I want to get this figured out soon, and quit suffering this embarressing problem. Thanks for the listening!
Charlene
Hi Charlene - I totally understand embarassing pee stories. Car trips are the worst. One time we were on the Florida turnpike and the bathrooms were not working. I sisn't know what to do - i was so upset (they weren't even letting anyone in there to wash hands or anything) and i ended up having to pee in a gatorade bottle in the car. It was awful. Good thing that my husband it so supportive. Oh and also, I read something that said that being in planes actually makes it worse. I have noticed this (you don't want to be the one on the aisle if you are on the same row with me in a plane). Last spring, we had to make a connecting flight in DC, and because of the terrorist threat, no one is allowed to stand up for about 30 minutes flying in and out of dc - so the bathroom is totally out of the question - it was horrible (and of course holding it makes it even worse - if you can hold it at all of course). What a frustrating disease!
I can't have caffine either - I am the same way with it. Hey, you should also try the prelief - i'm not sure that it works for frequency very well, but that horrible urgency feeling which is very painful for me - it does seem to help. I'm glad that you are getting to go to a urologist. Make sure that when you are searching for one, you call ahead of time and find out if he or she is very familiar with IC - some urologists are still in the dark ages and think it is a fake disease or have never even heard of it. I hope that you don't run into this. Please, let us know how it goes. As I said, the implant has done wonders for me and even though i am not normal (people ask - well, if it didn't fix you all the way - then why do it - they just don't understand that improving is soooo much better than nothing at all) - it has helped so much (plus you get a remote control - lol). I guess the point is that you don't have to feel helpless (i remember that feeling very well) with this. Best of luck and keep posting =).
-Michelle
Well just one (1) swallow of wine bothers me.
Fellow IC-G-Fers where can i find the list of foods that aggravate IC?
This is my theory: something i eat/drink affects my bladder (bladder is allergic?) immediately and it wants me to go and get rid of it, because it is always a small amount of urine (bladder is definitely not full).
are soy supplements for menopause bad also?
i would like to just wear a bag that urine automatically drips into so that i wouln't have to be getting up all the damn time.
tina
when you say "Aspirin" does that mean motrin/ibupropen also?
because i take them daily and don't notice any pain right after taking them.
tina
Fellow IC-G-Fers where can i find the list of foods that aggravate IC?
This is my theory: something i eat/drink affects my bladder (bladder is allergic?) immediately and it wants me to go and get rid of it, because it is always a small amount of urine (bladder is definitely not full).
are soy supplements for menopause bad also?
i would like to just wear a bag that urine automatically drips into so that i wouln't have to be getting up all the damn time.
tina
QUOTE(mvaught @ Jan 12 2006, 03:15 PM)
Hi there - partner in IC! =) Glad we found each other. Well, I have found that, yes, alcohol affects it - especially red wine (though honestly sometimes I just bear with it for some rum). it is wierd, because it seems that some foods/drink affect me in certain ways and others affect me in others - for example, 2 glasses of red wine means frequency and urgency and pain, while 2 rum drinks (just go with it since i am already on this example) will only cause the frequency (and maybe minor urgency, but not too bad). so, i guess i have found that foods affect me categorically. Soy Soy Soy is bad bad bad, although I have been able to tolerate a very small amount (like once a month or so) an a very infrequent basis. Orange juice (though the Low Acid kind seems better), vinegar, chocolate for sure. I have the coffee problem as well (though decaf seems to only affect the frequency in small, infrequent amounts). Hmmm, I haven't though of testing sugar - my husband has a carnitine deficiency and cannot have sugar - so i eat sugar free because of him - though I have found that nutra-sweet affects me where as Splenda seems better. I am also unsure about salt - since I put it in everything, but I do think that lots of salt does seem bad (now that I think of super salty foods - yes, I think they do). Juices in general are hard (cranberry juice - especially!) but the pear juice seems ok. Oh, and finally tomatoes and anything that contains them, they cerainly affect me. And I am the same as you, before and around my period is torture - does the pain and irritation also seem to shoot through your legs? It is really awful - i always dread the days before my period for this reason. Have you seen a doctor about your IC? I have the interstim implant and it has really changed my life - though obviously not a complete cure - but the day to day is better (and sex is not so awfully painful). I would say that I have had about a 70% improvement as long as I don't eat too badly. For me, it was worth it, because even cutting out the "bad" foods was not helping (and I couldn't sleep, having to pee literally over 50 times a night and it was very painful - but never did I have an infection). anyway, as I said, it was worth it for me, so there is some hope for treatment =). Let me know what other foods affect you - because I sometimes don't think about things like sugar and salt - I wonder what else I am missing.
-Michelle
-Michelle
when you say "Aspirin" does that mean motrin/ibupropen also?
because i take them daily and don't notice any pain right after taking them.
tina
QUOTE(Ursula @ Jan 12 2006, 04:40 PM)
I also have had bladder problems, even though it was never diagnosed as anything but an irritated bladder or bladder infections.
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
Anyway, the reason I am answering the two of you is, that you sound like you might be having an intolerance to salicylates. Here is a link to another thread that might shed some light on this for you. Look at the lists and see if you don't recognize other things that cause a problem.
The ultimate test is to take Aspirin (as it is salicylic acid). If you don't react to it, then it can't be salicylates that are the problem (I am testing the Aspirin tomorrow to know if I am intolerant to them myself).
Link to thread on salicylates
This is fascinating. I was diagnosed with IC just before finding out I am a Celiac. I went through bladder ablation (torture!) and it didn't help at all.
What did help was going gluten-free, avoiding all citrus, wine and restricting my coffee intake to one cup a day.
I suffered miseries with my bladder, much of it very very embarrassing and upsetting. Travelling was a nightmare. Meetings were a nightmare. It was so awful.
Thanks for bringing this thread back - I would have missed it otherwise.
What did help was going gluten-free, avoiding all citrus, wine and restricting my coffee intake to one cup a day.
I suffered miseries with my bladder, much of it very very embarrassing and upsetting. Travelling was a nightmare. Meetings were a nightmare. It was so awful.
Thanks for bringing this thread back - I would have missed it otherwise.
Hi everyone,
This last winter, I definitely had IC symptoms and very, very, severe, much worse around my period. The same trouble with alcohol and pressure that you guys mentioned. Tina, I know exactly what you mean about having problems adding anything to your body at all. I was definitely in the bathroom every hour, and I had to basically hug my knees many nights to get to sleep, the pressure was always so bad. I went gluten free in March, and since then my IC has improved A LOT (but it's still there) and I can actually drink coffee again, which I love, but other than that I still stay away from all beverages that aren't water. So hopefully the longer we stay gluten free, the more our IC will clear up. I have never been officially diagnosed with celiac, (just a strong suspicion) but whether or I have it or not staying free of gluten has helped tremendously. I really do think that if you've got a gluten problem it just starts attacking many different areas of your body, one after another....
Sara
This last winter, I definitely had IC symptoms and very, very, severe, much worse around my period. The same trouble with alcohol and pressure that you guys mentioned. Tina, I know exactly what you mean about having problems adding anything to your body at all. I was definitely in the bathroom every hour, and I had to basically hug my knees many nights to get to sleep, the pressure was always so bad. I went gluten free in March, and since then my IC has improved A LOT (but it's still there) and I can actually drink coffee again, which I love, but other than that I still stay away from all beverages that aren't water. So hopefully the longer we stay gluten free, the more our IC will clear up. I have never been officially diagnosed with celiac, (just a strong suspicion) but whether or I have it or not staying free of gluten has helped tremendously. I really do think that if you've got a gluten problem it just starts attacking many different areas of your body, one after another....
Sara
Yes, I have it. It basically ended my teaching career 12 yrs ago. It is much better now....I thought it got better because of Lyme treatment.... I blamed Lyme for causing the bladder problems.
It's not as bad now as in 1992 when I was dxd. Maybe it will be non-existent now that I"m gluten free!!!
It's not as bad now as in 1992 when I was dxd. Maybe it will be non-existent now that I"m gluten free!!!
Hi
I also experienced some bladder problems that got worse this year before being diagnosed with celiac. i had that bladder stretching procedure that made it wrose for a month but not its much better (knock on wood) they said i didnt have ic but had a "hypersensitive bladder." my symptoms were that i always had to pee and it burned hwen i peed but everytime i would get tested for a bladder infection there wasnt one...............so annoying like a permanent UTI
Jess
I also experienced some bladder problems that got worse this year before being diagnosed with celiac. i had that bladder stretching procedure that made it wrose for a month but not its much better (knock on wood) they said i didnt have ic but had a "hypersensitive bladder." my symptoms were that i always had to pee and it burned hwen i peed but everytime i would get tested for a bladder infection there wasnt one...............so annoying like a permanent UTI
Jess
Hi~
I had urgency, frequency, occasional incontinence, stabbing pain, a feeling of swollen/ numbness... never an infection... my doctor thought I was a nutcase who just liked personal exams ~ but it turned out related to a B12 deficiency...so check that out! Or just take 1000mcg of B12 daily for several months, and see if it helps. I had many other symptoms with a B12 deficiency...but UT symptoms were one of the first to show.
On B12 deficiency
jcc
I had urgency, frequency, occasional incontinence, stabbing pain, a feeling of swollen/ numbness... never an infection... my doctor thought I was a nutcase who just liked personal exams
~ but it turned out related to a B12 deficiency...so check that out! Or just take 1000mcg of B12 daily for several months, and see if it helps. I had many other symptoms with a B12 deficiency...but UT symptoms were one of the first to show.On B12 deficiency
jcc
I was diagnosed with IC in 2003. I have been miserable the last 4 weeks. My IC starts acting up when I am under stress. Of course stress is part of my daily life. I went to a walk-in clinic last week thinking that I had a kidney infection. Nope, must have been the IC. I'm miserable. It's hard to be a celiac and watch for IC stuff too. Of course, it does not help when I'm drinking alcohol either. Damned if I do and damned if I don't.
My mother had a history of cystites which eventually led to a hysterectomy and her being very ill.
In retrospect ... a gluten-free diet might have been the answer..
In retrospect ... a gluten-free diet might have been the answer..
Hi,
I am new and this is my first post. I was diagnosed with CI and it seems to be much better now that I am gluten free. Everything is better now.
My parents were told I would out grow my allergy to wheat and milk and they could slowly give it to me. I have been so sick for so long just like all of you. I am hanging on to the chance that it was gluten the whole time. I have tried so many diets and cures with no results. Now I can think so much clearer and have started enjoying my life so much more.
Thank you, all of you, and I hope we all stop the suffering and pain of this awful Celiac stuff.
I am new and this is my first post. I was diagnosed with CI and it seems to be much better now that I am gluten free. Everything is better now.
My parents were told I would out grow my allergy to wheat and milk and they could slowly give it to me. I have been so sick for so long just like all of you. I am hanging on to the chance that it was gluten the whole time. I have tried so many diets and cures with no results. Now I can think so much clearer and have started enjoying my life so much more.
Thank you, all of you, and I hope we all stop the suffering and pain of this awful Celiac stuff.
I am completely new with this so please bear with me. I technically haven't been diagnosed with anything, celiac or IC, but I'm pretty sure that I have both and it is incredibly frustrating. I also have trouble with red wine and such. But honestly, I feel like almost every food I eat either irritates my GI system or gives me urinary problems.
How did you guys finally get diagnosed.?I have seen 30 specialists in the past 4 years and been tested several times for celiacs, diabetes, endometriosis, .... basically anything the doctors can think of. Everything comes back negative. The only thing they discovered is that it takes my stomach a really long time to digest anything (like 3-4x the normal pace). I used to think I just got UTIs all the time and that the culture test must just be wrong since it kept coming back negative. Now I believe IC is a much better explanation.
I read through the postings that you guys wrote and have started myself on a complete elimination diet (for the IC) and bought some Prelief this morning. I don't know if I should also stop eating gluten because I have had 2 blood tests for celiac and 1 endoscopy and they all came back negative. I also don't what I will be able to eat if I avoid the 'bad foods' for both IC and celiacs. That basically leaves milk and vegetables The weird thing is that my doctor now gives me Cipro when I complain of my UTI-like symptoms and it does work a little. Do you find this to be true?
And how do you feel about soy? Peanuts tend to aggrevate my stomach so I switched to soy butter but now I think I shouldn't be eating this either?????
I'm very confused. I didn't have any of this stuff before 4 years ago and now I can't make it go away. Did your symptoms come on all of a sudden?? I should note that 4 years ago I was diagnosed with acute appendicitis and rushed to the hospital for to remove my appendix. That is when all this nonsense started.
Thanks guys. I'm excited to have found this site.
--robin
Thanks,
Robin
How did you guys finally get diagnosed.?I have seen 30 specialists in the past 4 years and been tested several times for celiacs, diabetes, endometriosis, .... basically anything the doctors can think of. Everything comes back negative. The only thing they discovered is that it takes my stomach a really long time to digest anything (like 3-4x the normal pace). I used to think I just got UTIs all the time and that the culture test must just be wrong since it kept coming back negative. Now I believe IC is a much better explanation.
I read through the postings that you guys wrote and have started myself on a complete elimination diet (for the IC) and bought some Prelief this morning. I don't know if I should also stop eating gluten because I have had 2 blood tests for celiac and 1 endoscopy and they all came back negative. I also don't what I will be able to eat if I avoid the 'bad foods' for both IC and celiacs. That basically leaves milk and vegetables
The weird thing is that my doctor now gives me Cipro when I complain of my UTI-like symptoms and it does work a little. Do you find this to be true?And how do you feel about soy? Peanuts tend to aggrevate my stomach so I switched to soy butter but now I think I shouldn't be eating this either?????
I'm very confused. I didn't have any of this stuff before 4 years ago and now I can't make it go away. Did your symptoms come on all of a sudden?? I should note that 4 years ago I was diagnosed with acute appendicitis and rushed to the hospital for to remove my appendix. That is when all this nonsense started.
Thanks guys. I'm excited to have found this site.
--robin
Thanks,
Robin
Hi,
I have IC and just had a recent flare after a actual UTI. My intitial bought started after being treated with cipro and it happened again this time. From what I have read antibiotics can ultimately make it worse because it affects the immune system and IC is autoimmune. Cipro is extremely dangerous and I stopped taking it after 1 day this time when I started having muscle pain. I read a lot of testimonials reporting that cipro has crippled them and caused many serious issues. Do not take anibiotics is there is no infection, you are only hurting your immune system and setting yourself up for overgrowth of yeast. Celiac or even yeast overgrowth could explain digestive isses. Or it could be both. Some even feel that yeast overgrowth can cause IC and food intolerances. I don't have diagnosed celiac, but have gluten intolerance diagnosed through stool tests through Enterolabs. You could try that route. Good luck and e-mail me if you want to talk further.
On the IC diet I eat chicken, fish, turkey, eggs, rice, corn, most veggies and pears. I can tolerate mozzerella, montery jack, feta and vanilla icecream. I take prelief with meals.
I have IC and just had a recent flare after a actual UTI. My intitial bought started after being treated with cipro and it happened again this time. From what I have read antibiotics can ultimately make it worse because it affects the immune system and IC is autoimmune. Cipro is extremely dangerous and I stopped taking it after 1 day this time when I started having muscle pain. I read a lot of testimonials reporting that cipro has crippled them and caused many serious issues. Do not take anibiotics is there is no infection, you are only hurting your immune system and setting yourself up for overgrowth of yeast. Celiac or even yeast overgrowth could explain digestive isses. Or it could be both. Some even feel that yeast overgrowth can cause IC and food intolerances. I don't have diagnosed celiac, but have gluten intolerance diagnosed through stool tests through Enterolabs. You could try that route. Good luck and e-mail me if you want to talk further.
On the IC diet I eat chicken, fish, turkey, eggs, rice, corn, most veggies and pears. I can tolerate mozzerella, montery jack, feta and vanilla icecream. I take prelief with meals.
I just did a search on the internet and found this wonderful link. I'm so excited to see there are other people that can relate to what I'm going through!
I can't eat gluten, dairy, soy, and milk.
I had a colonoscopy and endoscopy that came up negative as well. But tests aren't always accurate. I know I have Celiac and IC. I have found huge amounts of help from this link. Interstitial Cystitis Association
All the lastest research on IC is on this website. You can also request a list of physicians in your area that can treat IC. So that might help you find a good doctor! I've been off of gluten for a year so my stomach feels a ton better, but my bladder is doing horrible. The Dr. says my IC is caused by the Celiac disease and that my bladder just takes longer to heal then my stomach? I'm pretty confused about the whole thing. I'm desperately searching for something to help my bladder. I've had a cystoscopy (I wouldn't recommend it. It's a horrible surgery that streches your bladder out). I've tried Detrol, Pyridium, and now I'm on hydroxyzine. Nothing is helping. I love reading everyone's posts because I can relate so much to y'all.
Any success stories with therapies tried for the bladder? I need some advice.
I'm definitely going to try the prelief y'all suggested. I'm about to go on the antibiotic leveaquin for an infection. I hope that won't make things worse.
I can't eat gluten, dairy, soy, and milk.
I had a colonoscopy and endoscopy that came up negative as well. But tests aren't always accurate. I know I have Celiac and IC. I have found huge amounts of help from this link. Interstitial Cystitis Association
All the lastest research on IC is on this website. You can also request a list of physicians in your area that can treat IC. So that might help you find a good doctor! I've been off of gluten for a year so my stomach feels a ton better, but my bladder is doing horrible. The Dr. says my IC is caused by the Celiac disease and that my bladder just takes longer to heal then my stomach? I'm pretty confused about the whole thing. I'm desperately searching for something to help my bladder. I've had a cystoscopy (I wouldn't recommend it. It's a horrible surgery that streches your bladder out). I've tried Detrol, Pyridium, and now I'm on hydroxyzine. Nothing is helping. I love reading everyone's posts because I can relate so much to y'all.
Any success stories with therapies tried for the bladder? I need some advice.
I'm definitely going to try the prelief y'all suggested. I'm about to go on the antibiotic leveaquin for an infection. I hope that won't make things worse.
QUOTE(icceliac @ Feb 9 2007, 09:58 AM)
I am completely new with this so please bear with me. I technically haven't been diagnosed with anything, celiac or IC, but I'm pretty sure that I have both and it is incredibly frustrating. I also have trouble with red wine and such. But honestly, I feel like almost every food I eat either irritates my GI system or gives me urinary problems.
How did you guys finally get diagnosed.?I have seen 30 specialists in the past 4 years and been tested several times for celiacs, diabetes, endometriosis, .... basically anything the doctors can think of. Everything comes back negative. The only thing they discovered is that it takes my stomach a really long time to digest anything (like 3-4x the normal pace). I used to think I just got UTIs all the time and that the culture test must just be wrong since it kept coming back negative. Now I believe IC i
I read through the postings that you guys wrote and have started myself on a complete elimination diet (for the IC) and bought some Prelief this morning. I don't know if I should also stop eating gluten because I have had 2 blood tests for celiac and 1 endoscopy and they all came back negative. I also don't what I will be able to eat if I avoid the 'bad foods' for both IC and celiacs. That basically leaves milk and vegetables The weird thing is that my doctor now gives me Cipro when I complain of my UTI-like symptoms and it does work a little. Do you find this to be true?
And how do you feel about soy? Peanuts tend to aggrevate my stomach so I switched to soy butter but now I think I shouldn't be eating this either?????
I'm very confused. I didn't have any of this stuff before 4 years ago and now I can't make it go away. Did your symptoms come on all of a sudden?? I should note that 4 years ago I was diagnosed with acute appendicitis and rushed to the hospital for to remove my appendix. That is when all this nonsense started.
Thanks guys. I'm excited to have found this site.
--robin
Thanks,
Robin
How did you guys finally get diagnosed.?I have seen 30 specialists in the past 4 years and been tested several times for celiacs, diabetes, endometriosis, .... basically anything the doctors can think of. Everything comes back negative. The only thing they discovered is that it takes my stomach a really long time to digest anything (like 3-4x the normal pace). I used to think I just got UTIs all the time and that the culture test must just be wrong since it kept coming back negative. Now I believe IC i
I read through the postings that you guys wrote and have started myself on a complete elimination diet (for the IC) and bought some Prelief this morning. I don't know if I should also stop eating gluten because I have had 2 blood tests for celiac and 1 endoscopy and they all came back negative. I also don't what I will be able to eat if I avoid the 'bad foods' for both IC and celiacs. That basically leaves milk and vegetables
The weird thing is that my doctor now gives me Cipro when I complain of my UTI-like symptoms and it does work a little. Do you find this to be true?And how do you feel about soy? Peanuts tend to aggrevate my stomach so I switched to soy butter but now I think I shouldn't be eating this either?????
I'm very confused. I didn't have any of this stuff before 4 years ago and now I can't make it go away. Did your symptoms come on all of a sudden?? I should note that 4 years ago I was diagnosed with acute appendicitis and rushed to the hospital for to remove my appendix. That is when all this nonsense started.
Thanks guys. I'm excited to have found this site.
--robin
Thanks,
Robin
Hey Robin,
I'm not exactly how to use this site. I'm new as well. Even if your tests are negative for celiac you can still be gluten intolerant. All my tests came back negative but I eliminated gluten from my diet and I feel a lot better. I started eating more soy and nuts when I eliminated milk and wheat from my diet but those made me sick too. I find the safest foods for IC and Celiac are fruits that aren't too citrus, vegetables (except for tomatoes, onions, and peppers), and lean meats. I eat a lot of salads and those seem to work. Even dairy can flair up your bladder symptoms. Sunflower and pumkin seeds are a good snack. I hope this helps. Tests aren't always accurate. Good luck. It can be a difficult thing trying to solve the mystery of your health problems.
I have been diagnosed with Interstitial Cystitis and Gluten Intolerance. Both diagnosed for the first time in my early 30's. If I only knew in my earlier years how lucky I was to be able to eat what I wanted!! Oh well health comes first :-)
Hey You Guys!
I have Interstitial Cystis symptoms, they've been a problem for me for awhile. And it's bad. I used to think it was a separate issue. BUT, now I'm finding out that it stems from my adrenal problems. I am posting an excellent link about adrenal exhaustion, and I really think you should please take the time to read it, and get down to the part where it talks about frequent urination. I've found I can alleviate mine with saltwater.
Especially anyone who also has thyroid, hypoglycemia, and food allergies need to read this, because the adrenal glands are often the main culprit. I have all of the above and I think that's where it comes from.
With adrenal fatigue, fatigue is of course what you hear about the most. BUT, I had other symptoms of it long before I felt exhausted. Also, you don't want to have to restrict your diet even more then we already. No gluten is fine for me if that's all it is, but then no gluten, no coffee, no chocolate, it's gets more difficult.
Please read it!
Sara
http://tuberose.com/Adrenal_Glands.html
I have Interstitial Cystis symptoms, they've been a problem for me for awhile. And it's bad. I used to think it was a separate issue. BUT, now I'm finding out that it stems from my adrenal problems. I am posting an excellent link about adrenal exhaustion, and I really think you should please take the time to read it, and get down to the part where it talks about frequent urination. I've found I can alleviate mine with saltwater.
Especially anyone who also has thyroid, hypoglycemia, and food allergies need to read this, because the adrenal glands are often the main culprit. I have all of the above and I think that's where it comes from.
With adrenal fatigue, fatigue is of course what you hear about the most. BUT, I had other symptoms of it long before I felt exhausted. Also, you don't want to have to restrict your diet even more then we already. No gluten is fine for me if that's all it is, but then no gluten, no coffee, no chocolate, it's gets more difficult.
Please read it!
Sara
http://tuberose.com/Adrenal_Glands.html
my Ic started last april. I also got very constipated at the time. I now deal with ic, chronic constipation, weight loss, perimenopausal, hair loss, cold hands and feet, tired all the time, always hungry after eating, and gas, bloating, yeast lots of yeast. I haven't had gluten for 4 months but none of these symptoms go away.
QUOTE(adamssa @ Feb 25 2007, 03:49 PM)
Hey You Guys!
I have Interstitial Cystis symptoms, they've been a problem for me for awhile. And it's bad. I used to think it was a separate issue. BUT, now I'm finding out that it stems from my adrenal problems. I am posting an excellent link about adrenal exhaustion, and I really think you should please take the time to read it, and get down to the part where it talks about frequent urination. I've found I can alleviate mine with saltwater.
Especially anyone who also has thyroid, hypoglycemia, and food allergies need to read this, because the adrenal glands are often the main culprit. I have all of the above and I think that's where it comes from.
With adrenal fatigue, fatigue is of course what you hear about the most. BUT, I had other symptoms of it long before I felt exhausted. Also, you don't want to have to restrict your diet even more then we already. No gluten is fine for me if that's all it is, but then no gluten, no coffee, no chocolate, it's gets more difficult.
Please read it!
Sara
http://tuberose.com/Adrenal_Glands.html
I have Interstitial Cystis symptoms, they've been a problem for me for awhile. And it's bad. I used to think it was a separate issue. BUT, now I'm finding out that it stems from my adrenal problems. I am posting an excellent link about adrenal exhaustion, and I really think you should please take the time to read it, and get down to the part where it talks about frequent urination. I've found I can alleviate mine with saltwater.
Especially anyone who also has thyroid, hypoglycemia, and food allergies need to read this, because the adrenal glands are often the main culprit. I have all of the above and I think that's where it comes from.
With adrenal fatigue, fatigue is of course what you hear about the most. BUT, I had other symptoms of it long before I felt exhausted. Also, you don't want to have to restrict your diet even more then we already. No gluten is fine for me if that's all it is, but then no gluten, no coffee, no chocolate, it's gets more difficult.
Please read it!
Sara
http://tuberose.com/Adrenal_Glands.html
QUOTE(tabasco32 @ Feb 27 2007, 10:26 PM)
my Ic started last april. I also got very constipated at the time. I now deal with ic, chronic constipation, weight loss, perimenopausal, hair loss, cold hands and feet, tired all the time, always hungry after eating, and gas, bloating, yeast lots of yeast. I haven't had gluten for 4 months but none of these symptoms go away.
I have all the same issues. I found that there were other foods I needed to eliminate from my diet. I eliminated soy, nuts, and dairy from my diet and now I'm gaining weight, my bowels are normal, I don't have gas or bloating any more. Acidophylus and ground flax seeds have been really helpful. I'm still trying to get the IC under control but my stomach is improving and I no longer have cold hands and feet anymore. Maybe you have some other food allergies? or is it taking time for your stomach to heal? I was off gluten a year before I saw big improvements. Let me know if there is anything I can do to help. I know it can be so frustrating not knowing what to do.
QUOTE(mvaught @ Jan 5 2006, 09:17 AM)
Hi, I wondering if any of you also have interstitial cystitis. I have it and it seems that I have food related problems with that as well - of course it is a bunch of different foods that have nothing to do with gluten, like, well, soy and red wine to name a couple...(I have read that this is "normal" for people with IC). I got the interstim implant and that has helped a great deal, but still have issues with it when i eat or drink something "wrong." Anyway, I find it difficult to cut out gluten (dairy is a rough one too), and everything that affects my IC - there is a list of foods that are bad for IC and it includes almost everything one can imagine, of course except bread - ha, how is that for fun! If you can sympathize, please post so i don't feel so lonely. Of course, I never really feel lonely - this is such a great site!
gluten-free intolerance/IC link?
Hello to everyone on the site, especially those who are struggling with both IC and gluten intolerance. For those of you who don't know what IC is, in short it is "Interstitial Cystitis", a chronic inflammatory process in the bladder lining that is not caused by infection, and it causes symptoms such as pain, frequency, urgency, and sometimes hesitation, or trouble getting a stream of urine started. Many, many people with IC find their symptoms get worse from certain foods, even though there are doctors out there who say that diet does not effect IC. I have had IC fo 10+ years, and have known I had gluten intolerance for 4+ years, but only made the connection when I realized that any gluten, even in tiny amounts, effected all my mucosa. At various times I have had a mouth full of canker sores, ulcers on my tongue, tiny ulcerations and soreness inside my eyelids, and my urologist saw the ulcerations in my bladder during a cystoscopy. When I began following a very strick g.f. diet, all of these issues diminished or resolved. By the way, I initially made the connection to wheat allergy/gluten intolerance due to a persistent skin rash, not the GI symptoms like gas, bloating and diarrhea that are more typical. It was only after a year of eating gluten free when I experimentally reintroduced gluten that my gut reacted. To make a long story short, now others are finding there is a connection between IC and gluten intolerance, or between gluten intolerance and an auto-immune response that for us, seems to focus on the bladder. Here are some things I have done that have truly helped:
-a course of long-term antibiotics that were prescribed after I sent a urine sample in for a "broth culture", which is more sensitive at detecting certain type of infections (most doctors don't do it, but United Medical Labs or Fairfax Medical Labs might still do them)
-stay strictly on a diet free of gluten, dairy, sugar, alcohol, and caffeine (most other food sensitivities fell away if I kept up with these.
-built up my immune system by taking a supplement called "Garden of Life Goatein IG", which is a predigested goat milk protein with goat colostrum, which contains secretory immune globulin, expensive, but worth it.
-a type of body-work called "Integrated Manual Therapy", an off-shoot of physical therapy/cranio-sacral therapy
-a similar/related type of body-work called "Myo-fascial release", which helped loosen areas of scar tissue and endometriosis, as well as relieving pain and inflammation.
After being out of work for several years due to poor sleep and chronic pain (I'm a nurse), I am now working again, and although I still have some issues, I no longer feel like a chonically ill person, unless I go off my diet.
Hang in there,
Wendy
-a course of long-term antibiotics that were prescribed after I sent a urine sample in for a "broth culture", which is more sensitive at detecting certain type of infections (most doctors don't do it, but United Medical Labs or Fairfax Medical Labs might still do them)
-stay strictly on a diet free of gluten, dairy, sugar, alcohol, and caffeine (most other food sensitivities fell away if I kept up with these.
-built up my immune system by taking a supplement called "Garden of Life Goatein IG", which is a predigested goat milk protein with goat colostrum, which contains secretory immune globulin, expensive, but worth it.
-a type of body-work called "Integrated Manual Therapy", an off-shoot of physical therapy/cranio-sacral therapy
-a similar/related type of body-work called "Myo-fascial release", which helped loosen areas of scar tissue and endometriosis, as well as relieving pain and inflammation.
After being out of work for several years due to poor sleep and chronic pain (I'm a nurse), I am now working again, and although I still have some issues, I no longer feel like a chonically ill person, unless I go off my diet.
Hang in there,
Wendy
Hello all,
I was diagnosed with Interstitial Cystitis 2 weeks ago and Celiac Disease the day after. I'm overwhelmed and frustrated just like most of you that are newly diagnosed and I'm struggling to find a diet plan as well. Thankfully there ARE still some safe foods are ok for both diets and I'm searching online everyday trying to find as many as I can. Now, so far, I've been sticking primarily with the gluten-free diet because I feel that gluten does more damage to your body than acidic (IC- unfriendly) foods. While acidic foods DO hurt the bladder and have a tendency to be really painful, gluten can be like a poison to some of us. One thing that I have noticed so far on this gluten-free diet is that my bladder symptoms have begun to dissipate. This leads me to believe that celiac disease and IC are very much related. I have had IC symptoms for a year now and this is the first time that my bladder is actually starting to feel better and I truly believe it is because I have gone gluten-free, even for only 2 weeks. I should add that I have also been taking Prelief for 4 weeks and I have no doubt that it has been helping me as well. I'm hoping that as my intestines begin to heal from my 21 years of damage by doing this diet, I will be able to absorb acidic foods better. I know that this is just a theory but I'm going keep going gluten-free and see what happens. So for those of you newly diagnosed and feel that you need to go full on the IC diet as well as the gluten-free diet, maybe going primarily gluten-free, with the addition of Prelief, will work for you. But depending on the severity of your IC or Celiac, this may or may not work, but I would think it is certainly worth a shot. I am still going to stay away from the big no-no's for IC such as pinneaple, coffee, and tomatoes, but I'm definately not eliminating everything considered "unfriendly" for IC just yet. I'm going to give this a real shot, though, and I'll let you all know how it turns out soon. If anyone has tried this with or without success please let me know. My goal is give hope to Celiacs and ICers that feel they have no good food options left. It may not be as bad as you think
.
Meghan
IC, Celiac, GERD, IBS, Endometriosis, TMJ, Fibromyalgia, PFD, RLS
I was diagnosed with Interstitial Cystitis 2 weeks ago and Celiac Disease the day after. I'm overwhelmed and frustrated just like most of you that are newly diagnosed and I'm struggling to find a diet plan as well. Thankfully there ARE still some safe foods are ok for both diets and I'm searching online everyday trying to find as many as I can. Now, so far, I've been sticking primarily with the gluten-free diet because I feel that gluten does more damage to your body than acidic (IC- unfriendly) foods. While acidic foods DO hurt the bladder and have a tendency to be really painful, gluten can be like a poison to some of us. One thing that I have noticed so far on this gluten-free diet is that my bladder symptoms have begun to dissipate. This leads me to believe that celiac disease and IC are very much related. I have had IC symptoms for a year now and this is the first time that my bladder is actually starting to feel better and I truly believe it is because I have gone gluten-free, even for only 2 weeks. I should add that I have also been taking Prelief for 4 weeks and I have no doubt that it has been helping me as well. I'm hoping that as my intestines begin to heal from my 21 years of damage by doing this diet, I will be able to absorb acidic foods better. I know that this is just a theory but I'm going keep going gluten-free and see what happens. So for those of you newly diagnosed and feel that you need to go full on the IC diet as well as the gluten-free diet, maybe going primarily gluten-free, with the addition of Prelief, will work for you. But depending on the severity of your IC or Celiac, this may or may not work, but I would think it is certainly worth a shot. I am still going to stay away from the big no-no's for IC such as pinneaple, coffee, and tomatoes, but I'm definately not eliminating everything considered "unfriendly" for IC just yet. I'm going to give this a real shot, though, and I'll let you all know how it turns out soon. If anyone has tried this with or without success please let me know. My goal is give hope to Celiacs and ICers that feel they have no good food options left. It may not be as bad as you think
.Meghan
IC, Celiac, GERD, IBS, Endometriosis, TMJ, Fibromyalgia, PFD, RLS
Help! I've been gluten free for a year (except for when I accidently eat some). My bladder symptoms have only gotten worse, not better. I'm eating a very restricted diet. My intestines are doing well, I'm gaining weight, and my immune system is really strong, but I'm still having huge problems with my bladder. I have a severe case of IC. I'm always in bed in pain and I don't know what to do. This site has already been so helpful. If any of you have any more suggestions for my bladder please let me know. Thank you!
This is a very interesting thread. I was diagnosed with IC a year ago, and not long after I was diagnosed with IBS. However, recently my intestinal symptoms have been getting worse and I am getting tested for celiac. It would be interesting to discover if there is a connection between the two. The cause of IC is unknown, but some suspect it may be autoimmune. My IC symptoms began after a series of UTIs (treated with antibiotics). It seemed that the last UTI had returned, but the culture came back negative and the symptoms remained. I just started the gluten free diet today, and I will definitely be watching my bladder symptoms to see if they improve!
For those of you who are struggling with IC, my symptoms are pretty much under control now due to three things: diet, Prelief, and Elmiron. In the beginning I had to be very restrictive with my diet and couldn't eat anything even remotely acidic. However, my doctor prescribed Elmiron, which is a prescription drug used to treat IC, and now I only have to avoid the most acidic foods. Prelief helps with these foods, and I can even eat some fairly acidic foods when I take Prelief, as long as I don't go overboard.
I pretty much had to diagnose myself with IC. I first saw two urologists - the first said I had urethritis, and gave me some pills that just treated the symptoms, expecting them to go away. The symptoms didn't go away, so I saw another urologist in the same practice. She said I had a narrow urethra, and wanted to perform a procedure to stretch it. I didn't want to do this without first learning more about it, so she prescribed me Elavil, which was meant to treat the pain (and it did help some). After that I did a bunch of research and read about IC. It seemed to fit and sounded a lot like what I was going through. I found a urologist in my area who specialized in IC and made an appointment, with a two month wait. The wait was worth it. He did a short exam and spent quite a bit of time talking with me about my symptoms and then diagnosed me with IC. He gave me Elmiron and I was on my way to feeling better! I encourage everyone to be proactive in your treatment - IC is not well known enough yet, and you may need to do some work on your own.
For those of you who are struggling with IC, my symptoms are pretty much under control now due to three things: diet, Prelief, and Elmiron. In the beginning I had to be very restrictive with my diet and couldn't eat anything even remotely acidic. However, my doctor prescribed Elmiron, which is a prescription drug used to treat IC, and now I only have to avoid the most acidic foods. Prelief helps with these foods, and I can even eat some fairly acidic foods when I take Prelief, as long as I don't go overboard.
I pretty much had to diagnose myself with IC. I first saw two urologists - the first said I had urethritis, and gave me some pills that just treated the symptoms, expecting them to go away. The symptoms didn't go away, so I saw another urologist in the same practice. She said I had a narrow urethra, and wanted to perform a procedure to stretch it. I didn't want to do this without first learning more about it, so she prescribed me Elavil, which was meant to treat the pain (and it did help some). After that I did a bunch of research and read about IC. It seemed to fit and sounded a lot like what I was going through. I found a urologist in my area who specialized in IC and made an appointment, with a two month wait. The wait was worth it. He did a short exam and spent quite a bit of time talking with me about my symptoms and then diagnosed me with IC. He gave me Elmiron and I was on my way to feeling better! I encourage everyone to be proactive in your treatment - IC is not well known enough yet, and you may need to do some work on your own.
I also have IC. My doctor was unable to find ulcerations on my bladder, but has diagnosed me with IC. Not everyone has the bladder ulcerations. Orange juice, anything with Cranberries, tomatoes, wine and stress all cause significant pain for me. I am being treated with Elavil at bedtime to help with the throbbing pain that I have when I have a flare-up. It is a very low dose and really seems to help. Today, I am home because of being glutened and because of bladder pain. I don't know if you guys have the same problem. When I am glutened, I also have bladder pain.
Yep, I was Dx with IC in May 2006. If any of you are Splenda eaters, stay away from it. In some of the research I've done, Splenda is can really irritate the bladder. I guess IC is just another piece of the puzzle with this issue. I'm still playing chicken and the egg and probably always will as other medical issues arise.
Splenda can irritate the digestive tract too. Stevia is a great alternative to Splenda. It is an extract from a naturally sweet herb. You can find it in the supplement section of health food stores.
My 2yo daughter was diagnosed with Celiac at the beginning of July this year and has now just been diagnosed with IC. I'm going to modify her diet even more and try the prelief. Any other ideas to help my 2yo cope with all of this? Any tricks that help alleviate the pain and discomfort?
QUOTE(SafeSpuds @ Aug 25 2007, 11:52 AM)
My 2yo daughter was diagnosed with Celiac at the beginning of July this year and has now just been diagnosed with IC. I'm going to modify her diet even more and try the prelief. Any other ideas to help my 2yo cope with all of this? Any tricks that help alleviate the pain and discomfort?
My IC medication (Elmiron) has been the biggest help for my pain, but I'm not sure if it is safe for children. You may want to look into freeze dried aloe vera - some people with IC have had success with it, and it is a more natural approach to treating the bladder walls. Aloe vera juice and gel (the edible kind) can work too, but make sure not to get any with added acid (many do, and it can really irritate the bladder) and make sure that the laxative part of the plant has been removed. I tried aloe vera juice, and hated the taste. If Elmiron hadn't helped, I was going to try Desert Harvest freeze dried aloe vera capsules next... it has been tested with IC patients and shown to help. Google "Desert Harvest" to find more about it.
Make sure that your daughter is drinking enough water. If something does irritate her bladder, plenty of water can help flush out the irritants. She will have to pee more, but water is important. Also, I have read that when in pain, Tums (which is not gluten free I think) or baking soda mixed in water can help. Some people also claim that Almond Breeze almond milk helps them.
QUOTE (mvaught @ Jan 5 2006, 10:17 AM)
Hi, I wondering if any of you also have interstitial cystitis. I have it and it seems that I have food related problems with that as well - of course it is a bunch of different foods that have nothing to do with gluten, like, well, soy and red wine to name a couple...(I have read that this is "normal" for people with IC). I got the interstim implant and that has helped a great deal, but still have issues with it when i eat or drink something "wrong." Anyway, I find it difficult to cut out gluten (dairy is a rough one too), and everything that affects my IC - there is a list of foods that are bad for IC and it includes almost everything one can imagine, of course except bread - ha, how is that for fun! If you can sympathize, please post so i don't feel so lonely. Of course, I never really feel lonely - this is such a great site!
This is all great information. I am gluten intolerant and have IC and have also experience the extreme bloating that feels like I am pregnant. I try to figure out if it is my colon or bladder. My GI Dr. put me on levbid for my colon, but it does help somewhat with the bladder. It doesn't seem to help with high acidic foods though. I have the same pulling pain. Can you tell me what the bubble gut is? I have seen this a number of times in the post and I think I have it, but is it related to the colon or bladder? Is it a sign of current leaky gut or is it just inflammation? I noticed this in your signature.
I have IC. I get bloated daily, but when my bladder is flaring it looks like I am 5 months pregnant. I get pulling pain to. I read something about fluids building up in the area due to the flare. I can't remember exactly. Type in distended abdomen with IC and you should get some info.
QUOTE (mvaught @ Jan 5 2006, 08:17 AM)
Hi, I wondering if any of you also have interstitial cystitis. I have it and it seems that I have food related problems with that as well - of course it is a bunch of different foods that have nothing to do with gluten, like, well, soy and red wine to name a couple...(I have read that this is "normal" for people with IC). I got the interstim implant and that has helped a great deal, but still have issues with it when i eat or drink something "wrong." Anyway, I find it difficult to cut out gluten (dairy is a rough one too), and everything that affects my IC - there is a list of foods that are bad for IC and it includes almost everything one can imagine, of course except bread - ha, how is that for fun! If you can sympathize, please post so i don't feel so lonely. Of course, I never really feel lonely - this is such a great site!
Hey! I am new to this forum. I have the same exact problems. Ever since I have been on a strict gluten-free diet my health is normal except for constant bladder pains. I seriously can't handle this pain anymore. I constantly have the burning feeling when I use the bathroom. My doctor prescribed me elmiron and she said that is shoud take 3-6 months for it to actually work. I am hoping this helps. I do notice that certain foods and drinks irritate it, so I try to do the whoel process of elmination. I never heard of interstim implant. Could you please give me more information about this. Thanks.
Alicia
Hi all,
I have gluten intolerance and IC. My IC was in remission even before going gluten free. It really kicked in after another UTI 2 years after going gluten free. I really believe a lot of IC is candida related. I think this may be the case for me. I currently take Cysta-q (with Quercitin) a natural remedy for IC. I also take 4 doses of 5-6 pellets of the homeopathic Cantharsis. The latter I can't do without. It really helps the pain and frequency. I am currently about to look into a naturaopathic doc who specializes in IC and gastro issues including gluten intolerance. His name is Dr. Snow and his is in the Woecster Ma. area. Not far from Boston. He has a website if you would like to check it out. I encourage any of you with IC to check out the IC Network and join their forum. It is very helpful. I have been educating those over there about celiac and gluten intolerance! Good luck to all.
I have gluten intolerance and IC. My IC was in remission even before going gluten free. It really kicked in after another UTI 2 years after going gluten free. I really believe a lot of IC is candida related. I think this may be the case for me. I currently take Cysta-q (with Quercitin) a natural remedy for IC. I also take 4 doses of 5-6 pellets of the homeopathic Cantharsis. The latter I can't do without. It really helps the pain and frequency. I am currently about to look into a naturaopathic doc who specializes in IC and gastro issues including gluten intolerance. His name is Dr. Snow and his is in the Woecster Ma. area. Not far from Boston. He has a website if you would like to check it out. I encourage any of you with IC to check out the IC Network and join their forum. It is very helpful. I have been educating those over there about celiac and gluten intolerance! Good luck to all.
hello there everyone with IC. it would be nice to share ideas so i am joining the thread. i have not been clinically diagnosed but theres enough symptons that match exactly. i can't really afford mutlitple tests that tell me nothing anyway and diet has helped relieve the bladder. most people think it is diabetes when i tell them my issues. needless to say i would not be here if i did not need assistance.
what i am wondering immediately...is this thee IC thread. theres the Candida. the Lyme. the Omg...?
also i am wondering if it is or is not recommended to try taking enzymes with IC. dealing with this candida/leaky gut issue i am trying things here and there to aid in digestion. i have been taking L-glutamine for almost 2 weeks now without much problems it seems. pua d'arco too but that seems to be begining to build and irritate more and more of course i am always eating things which affect me so who knows if i am weeding them out still or what. anyway are these things ok for IC, generally--just to rule them out should problems arise. also i seen that something called L-arginine was helpful and over the counter so without going through the testing to get something prescribed wchich is in the future i'm sure...think i can get the L-arginine at organic store?
thanks,
scotty
what i am wondering immediately...is this thee IC thread. theres the Candida. the Lyme. the Omg...?
also i am wondering if it is or is not recommended to try taking enzymes with IC. dealing with this candida/leaky gut issue i am trying things here and there to aid in digestion. i have been taking L-glutamine for almost 2 weeks now without much problems it seems. pua d'arco too but that seems to be begining to build and irritate more and more of course i am always eating things which affect me so who knows if i am weeding them out still or what. anyway are these things ok for IC, generally--just to rule them out should problems arise. also i seen that something called L-arginine was helpful and over the counter so without going through the testing to get something prescribed wchich is in the future i'm sure...think i can get the L-arginine at organic store?
thanks,
scotty