I FOUND THIS............I WILL TRY THIS (VITAMIN E)

No help here in North Carolina...still trying to seek a DR. who cares enough to do some research.

Frederick Saunders MD
Lancaster, Pennsylvania

Dr Daniel McGuire
South Florida Gastro Associates
Boynton Beach Florida (in Palm Beach County)

He accepted my Enterolab results, and based on that, my history and dietary response, diagnosed me. He was recommended by the local CSA of America support group.

~Li

Patricia Chen, MD Internal Medicine
Citrus Heights, CA

Doesn't think she's God. Considers the doctor patient relationship a team. Wants to hear what you have to say. Never made me feel like I was a hypochondriac.

Dr. Vallero, MD GI
Roseville and Carmichael, CA

Didn't make me feel like a hypochondriac. Didn't seem too sold on the celiac thing, but completely open and not confrontational or critical at all. I had the biopsy done, but more to check and make sure there wasn't anything more scary causing my symptoms. At my followup appt, he said that he had other patients who had negative biopsies but positive dietary response and to keep doing what I was doing. He said that I figured it out on my own.


Yinka Davies, MD Pediatric GI
Roseville, CA and Downtown Sacramento, CA

I had already put Jenny gluten-free for over a month when we had our appt. Told her the whole story and that I put her gluten-free because of Enterolab testing and how much better Jenny was doing. She was very interested and seemed to enjoy hearing about Jenny's before and after. All she said about the biopsy was that she was just asking because it was the gold standard, and <I didn't want to have the biopsy for Jenny did I?> I told her no. She said great. So all we're doing is blood work twice a year to make sure she's not developing any other related issues.

.....................

I've been very, very lucky with finding great MDs. I know how rare that is on this board. I really don't think that our GP's would have ever brought celiac/gluten intolerance up on their own, but when I brought it up, they went down that path right along with me.

Nancy

Dr. Kristie Gering
Chippewa Falls, WI

She's fantastic.

Dr. Jeffrey Stein
Columbia Presbyterian
New York, NY
212-305-5444

WONDERFUL!!!
He's a one-man show... he does it all from taking your basic vitals to prescribing Rx and diagnostic testing. Kind, compassionate human being. He's very cautious and thorough.

Dr. John Kravitz in Mount Laurel, New Jersey.

Listened to my story and was open to testing me for Celiac.

Austin, Texas
Dr. Craig Lubin

http://www.austingastro.com/docbios/lubin.html

Stefano Guandalini, MD Chicago Illinois
This man is amzaing!! He is the head of research at Chicago and travels around the world for research, but he is only a pediatric docotr.

Dr. Richard Schwartz
190 Groton Rd, Ayer MA
(978) 772-7500

I also cannot say enough good things about my GI doc.
I went in complaining of severe bloating after eating - I didn't even know what celiac disease was.
Because I am a T1 diabetic he suspected diabetic gastroparesis and did an upper endoscopy to see if my stomach was dumping it's food. Well while he was in there he decided to do a biopsy of my intestine- I did not know he was doing this. Well low and behold gastro was ruled out and the "most abnormal biopsy I've ever seen" confirmed the Celiac dx.
For those in MA/NH - Ayer is located in the Northern Central part of the state.

Dr. Bill Meyer, Atlanta, GA

Pediatric Gastroenterology

http://www.ccdhc.org/doctors/meyers.html

he is active in our local Celiac support group and a really nice guy!

Dr. Patricia Raymond
Hampton Roads/Norfolk/Virginia Beach

have not seen her myself, but have heard wonderful things about her. She is the advisory doc to the CSA group.

Dr Marni Nicholas
Portsmouth, NH
Primary Care

Dr. catherine Cheney
Beth Israel
Celiac specialist
Boston/Lexington, MA

THEY BOTH ROCK!!!!!!!!!!!!!!!!

Great topic! I was just thinking I need to find a new doc, because of recurring kidney pain.

Does anyone have a suggestion for Portland, OR?

Thanks for any help you can give.
Josh.

Dr. Thomas Brasitus
Dr. Nancy Merrill
GI's M.I. Bassett Hospital, Cooperstown, NY

Dr. Karen Nepveu, Rheumatologist
Colchester, Vermont

Dr. Alwyn Koil (NM Pediatrics) & Dr. Thomas Rothfeld (Presbyterian)
both of Albuquerque, NM
both general pediatricians and WONDERFUL doctors - very nice. Dr. Koil not totally sold on Enterolab because he's not familiar with them, but is very supportive and interested.

Dr. Jay Jacobi (SW Medical)
General practitioner - also of Albuquerque

I haven't had occasion to tell him about my family going gluten-free yet, but I fully expect him to be supportive when I do.

I wanted to add Dr. Jeffrey Fahl with the University of New Mexico. I haven't seen him myself, but we work for the same Univeristy and he is a VERY nice guy.

Dr. William Buser - GI - Gastrointestinal Center of Kansas City

&

Dr. Jose Cocjin - Pediatric GI - University of Kansas Medical Center

Dr. Michele (pronounced "Michael") Monaco, pediatric cardiologist, Danville, PA and State College, PA

Dr. James Rodrigues, pediatrician with Bellevue Peds, Pittsburgh PA

Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

***ARIZONA***

Dr. Shimamoto, SanTan Allergy and Asthma, Mesa (or Gilbert?), Arizona -- This is the single best doctor I have ever known! All 3 of our kids are being treated by him. He is the most down-to-earth, easy-going, yet extremely knowledgeable person you'd ever meet. My kids love going to him and the 35 minute drive to his office is so worth it. I would probably drive 2 hours to go to this guy if I had to...just can't say enough. It took 7 months and 4 doctors to make even a slight dent in my youngest son's issues. I had more answers in my first visit with this doctor than I did with all the rest put together.

Dr. Nancy Yokois, Pediatric GI, Scottsdale, AZ -- We've only been to her once. She was patient, extremely thorough, answered all our questions, very knowledgeable of celiac and eosinophilic disorders. No one can compare to Dr. Shimamoto, but she does come in a close second and I would highly recommend. She came highly recommended to us by several different people and it's easy to see why once you meet her.

Jeffrey Retig
Bryn Mawr, PA (Philadelphia suburb)

He's an excellent doctor and an extremely patient man - I highly recommend him!

I see Dr. Peter Green in New York.

Dr. Mark Ringold

Christiansburg, Virginia

Absolutely wonderful--probably the best doctor of any speciality that I've ever seen.

Dr. Peter Park - general practitioner
Wilmington, Vermont (Deerfield Valley Health Center)

He is willing to test me for anything I want and lets me call the shots. Is willing to work with any other doc I see (either western or natural medicine).

A second vote for Dr. Stefano Guandalini for pedi GI in the Chicago area. I would assume you could also find a good grown-up GI at the University of Chicago. Check their website at www.celiacdisease.net.

In the western suburbs of Chicago (Naperville), I would recommend Dr. Stephen Holland for grown ups. His website www.napervillegi.com has a lot of good information.

Our pediatrician, Dr. Linda Hamilton of Pediatric Health Assoc. in Naperville, did not hesitate to test our son for celiac disease. His only symptom was "failure to thrive". He did not have any diarrhea, stomach pain, stomach distention, or other "obvious" symptoms. She has been very supportive since his positive diagnosis via biopsy by Dr. Guandalini.

AutumnE,

I live in Grand Rapids, MI and wonderful if you feel she is worth the drive? I'm not sure of any of the allergists in my area.

Thanks,

Melissa

Another vote for Craig Lubin in Austin

Dr. Pau. Hanchett, Fresno, California....I LOVE him, had never heard of Celiac until he mentioned it and said he'd test me for it.

And another thing, I told him months ago that if he had any new bewildered Celiac patients that needed support, they could call me. I got my second one just today, and we're meeting for coffee later this week.

Melissa, She is lovely and well educated. Her and her husband both work there along with her dad. Dr Gail cookingham (the one with celiac) is there on fridays. Dr. Beane her husband is on mondays and saturdays. She doesnt do biopsy like an average GI. But she could help with dietary problems, intolerances, or allergies since it generally goes along with celiac disease in alot of cases.

Both of them are good at working with children also. But I dont recommend the dad (Dr Cory Cookingham) as he is very old, kinda grouchy, not patient, and Im not sure if he is familiar with enterolab. She did have to miss my sister's appt a few weeks ago so dr beane her husband saw her. She was glutened and it takes her approximately three days to recover enough to work.

4260 South Linden Road,
Flint, Michigan (MI)
810-733-3200
Toll free is 800-962-6751

Her regular office is in clarkston which is listed below. When I originally called to set up an appointment they said she didnt work there (error with a new medical assistant) because she wasnt a regular dr but she is there on fridays. Enterolab sent out her name with the genetic testing.



http://www.ucomparehealthcare.com/drs/mich...ngham_Gail.html

If you post this as a new topic you'll have more of a chance of most people seeing it. A lot of people wouldn't necessarily visit this topic, and stories of bad or rude doctors in your area can be valuable as well.

Nancy

Dr. Ziad Younis in Memphis, TN.

Dr. Bradley Borsari
Fullerton, California (Southern California)

Can’t say enough about him!
After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.
Very patient, younger doctor who knows his medicine!

Dr. Leff
6553 E. Baywood Ave.
Mesa, AZ 85206

480-324-0999

Gastroenterologist

Tests all of his IBS patients for Celiac; believes that it is not necessary to do the endo, if the blood test is positive. Believes a positive diatary response is an answer in itself. Also believes that Celiac and gluten intolerance are the same thing. Also puts some patients without Celiac on the gluten-free diet if he thinks they will benefit from the diet.

A compasionette, caring doctor. *****

Dr. Doherty (naturopathic doctor) here in NH who also suffers from celiac's herself and specializes in the disease:
http://www.pointnatural.com/about.htm

Didn't see anybody mention Dr. Fassano at the Univ of Maryland Medical Center in Baltimore. He is one of the best known celiac experts in the country and is usually quoted or featured in any articles you see in the popular press. He is a pediatric gastro (?) and only does the celiac clinic on Fridays, but I made an appointment with him for this Friday, months ago!

Old thread, but a positive shout for Dr. Craig Friesen in Kansas City, MO (Missouri), a pediatric GI. He made the connection between my son's reported proprioception / sensory problems and the possibility of vitamin E deficiency. Sure enough, he tested low, and we are about to begin supplementation. My son also has very small muscles (was suspected of possibly having a myopathy) - I have done some reading and it looks like vitamin E deficiency can sometimes cause symptoms like this.

I want to say same as above about:

Pavan Sachan, MD (gastro)
NJ - affiliated with Trinitas Hospital
Offices in Union, Union County
Linden, Union County
Center for Digestive Diseases

My gastro, Steven Fiske, MD of West Orange NJ, knows about celiac as well. Affiliated with St. Barnabas Medical Center

Wow this is a great thread, and still very valuable. I finally found an outstanding pediatric gastro for my son. I was so happy I was almost overwhelmed. I was beginning to think I would never find a ped. gastro. for my son, and those from Portland know it does not get much better than Doernbecher's.


Dr. Terry
Doernbecher Childrens Hospital
3181 Sw Sam Jackson Park Rd
Portland, OR 97239

She was outstanding! She listened to my son's history for 30 minutes and accepted his previous blood work and dietary response to the gluten free diet as diagnosis, provided his tTG was going down. I am happy to report he went from 21 (<7 is normal) to 4.3 in eight months.

Dr. Anca Pop in Memphis, TN. Unbelievably thorough, kind and compassionate.

Dr. Peter Park in Wilmington, VT. (half hour west of Brattleboro).
Deerfield Valley Health Center

He is a regular MD. Open to natural alternatives. Willing to let me research and will test or try anything I suggest. Willing to correspond with other docs both holistic and traditional.

For us, we had 2 local saviors--(in Portland, OR)
Dr. Kelvin Snyder, Sunset Pediatrics
Dr. William Marshall, peds GI, Emanuel Hospital

For the adults out there in PDX, I see a GREAT internal medicine Dr who happens to specialize in nutrition and Celiac Disease (and I don't have celiac disease). Her name is Char Glenn at the Nob Hill Internal Medicine Clinic.

I'm glad Jenny finally found a great Dr at OHSU. I did my internship there and my best friend works at Doernbechers. I have a love/hate relationship with that hospital. I learned a lot there, they do a lot of great things there, but I was somewhat butchered during a surgery there when I was 8 and have had to learn to live with some difficult respiratory abnormalities since then. Working at a hospital, I know things happen no matter where, it just sucks when it happens personally!!

CENTRAL FLORIDA

Dr. Henry Levine
1817 N. Mills Avenue
Orlando, FL 407-896-1726

After being blown off by my GP, my internist ('if you had celiac disease, you would be underweight, not overweight' AND that rash is foliculitis, not DH"), and my allergist not having a clue until I begged him for some type of gluten/celiac testing and coming back elevated...........I found a great GI doc on my very first try (after lots of research on docs).

I saw him today and he was wonderful, open-minded and actually listened. Base on my bloodwork, symptoms and the chronic DH rash that won't go away (he recognized immediately) he is almost 100% sure that I have celiac disease.
I am having two more tests and he scheduled a biopsy ahead of time. I also found out that I am newly Diabetic...what a shock!!! I also have Hashimoto's disease which seems to have quite a bit of crossover of patients into gluten sensitivity.

What a caring man. He told me I was NOT crazy and that he would get me feeling better very soon. He was very supportive of the dietician I told him I was going to be working with too.

Rebecca

I haven't seen her personally, but she works with the local support group:
Dr. Iqbal in Longmont, CO

In wisconsin there is a Celiac Disease Clinic!
I live in IL. and they still take us in WI.

It is off the Children's Hospital of Wisconsin in Milwaukee!
Dr. Grzegrz Telega MD

Dr. Noel Peterson, naturopath
560 First Street
Lake Oswego, OR 97034
503 636 2734

very intelligent and up on all the research, listens well

Any recommedations for a pediactric gastro in the Dallas-Fort Worth Area?

any suggestions for insurance-less person in NC, or Utah, since I will be moving there shortly?? I know I need to get insurance, it is just not affordable right now, and i def need to get in to see the DR. to see what all is going on with me..

Children's Pediatric Gastroenterology, PC
Knoxville, Tn affiliated with East Tennessee Childrens Hospital

Our ARNP Teresa Renner in London , KY referred us and is very understanding and easy to work with about Celiac.