Over the past couple years I haven't been able to sleep through the night. I would wake up at least 2 times and sometimes every half hour each night. I was tired all the time, and it just got worse. The thing is that about 2 weeks after I started the gluten free diet I slept 9 hours straight through. Now I am sleeping the whole night through most nights. The problem is that I am still so tired. Last week I slept from 11pm to 11 am, and I was ready to go back to bed 2 hours after I woke up. I never feel refreshed and don't feel like I have much energy. Does anyone have any suggestions as to what is wrong? I am always commenting on how tired I am, so my family/ friends keep suggesting that maybe I'm depressed. Although I do have alot to be depressed about, I know I'm not. I am optimistic and positive. I know there is definately something wrong. Is there any bloodwork that I should ask my dr for? Any suggestions or info would be very much appreciated. Thanks.

Hi im very new here and very newly diagnosed. I have anemia which is associated with celiac, and that makes you very exhausted along with paeleness of skin and a tendancy to be cold amonst other things. You could ask him to check your full blood count.
I hope things get better for you.
Takr Care Claire.

I am in the same boat as you are......

Have you had your thyroid checked? Perhaps you are hypothyroid. Also, I am really looking into adrenal fatigue and adrenal exhaustion as the cause of my continued fatigue. There was a link posted on here about it and it was VERY interesting;

www.stopthethyroidmadness.com

Another possibility is anemia, as mentioned. I also suffer from chronic anemia.

Karen

I suffer anemia, low thyroid and adrenal fatigue. The thyroid and adrenal fatigue are related. If your cbc/iron blood work comes out normal, google adrenal fatigue -- it's very common for those who have been under the stress of being ill.

I'm also exploring the adrenal fatigue thing...I too don't ever feel rested even when I DO sleep...this week haven't been able to sleep at all which is just making it worse. Fortunately I have a new group of doctors who really want to get to the bottom of things (they DO think it may be adrenal though).

I have sleep apnea, and I would suggest getting tested for that and other sleep problems. I would say get all of the blood tests (anemia, thyroid etc) u can first, but if u don't find anything, it could be worth looking into. The testing sux, but if u have a sleep disorder, there is a ton they can do to help!

There were several surprising things that I never would have thought might be all connected to each other. For me, one of the things that went away was my insomnia. I had insomnia for years. Mine was the not being able to fall asleep variety rather than the waking up after falling asleep. I literally remember being four years old and crying at night because I was so tired but I couldn't fall asleep. As I got older, I chose jobs where I wouldn't have to work in the mornings. Because once I did fall asleep I could easily sleep 12 hours straight and STILL wake up exhausted.

I went gluten-free after negative blood tests and negative biopsy. Now I just FALL asleep. I pretty much turn over, close my eyes and just fall asleep. And when I wake up in the morning (!!!) I'm actually awake with no thought as to how long I'm going to have to stay awake until I get a chance to take a nap. I also wake up on my own after about 8 hours.

If I get glutened, my brain just won't shut off and I experience the same type of insomnia that I had had since I could remember.

I hope you find some answers for your insomnia.

Nancy

Hey. Thanks for the replies. I do get my thyroid checked regularly because I'm a type1 diabetic. I will be seeing my endocrinologist on the 31st, so I'll be getting my usual bloodwork done. I will discuss anemia, adrenal fatigue, etc. with her. HOPEFULLY I will get some answers right away instead of another wild goose chase!

In Chinese medicine, different types of insomnia have diffferent causes: waking up in the night can be your liver. Just another viewpoint.