Does anyone know how long the blisters last?

For me about 24 hours

What blisters?

My blisters last 2 or 3 days and they take weeks to heal afterwards....it's no fun!

Could someone please explain what sort these blisters are, where they appear, what the cause is, etc? This is the first thread I recall seeing about such a thing, and all the responses thus far seem to suggest it is common. To my knowledge I have not had this symptom. Is this about the DH rash?

My blisters are a DH rash... just diagnosed December 20th. They are on my head, sides and back of my neck below the hairline, arms, back, hips, stomach and feet. Good thing its winter so I can cover everything up. The are caused by gluten. I get both internal and external reactions if gluten comes anywhere near me...

It depends on how much I have injested or if it is in hair products. Mine can take days to month and are DH. Right now something must have been used on my hair when I got it cut because my head is a mass of dh and is making me crazy. These can take months to disappear.

Okay, I have asked this question probably too many times before, but I have had a new experience with it. I developed what looked like the beginning of chicken pox (only smaller) on three spots of my leg -- all in close proximity. It was after I accidentally consumed gluten in generic antibiotics I was given. They itched like CRAZY -- because they started "popping", I covered them with a Tegaderm dressing to keep the fluid from moving to other areas. Now I'm left with some mild scars (I scar pretty badly anyway). The dermatologist said that it sounded like DH, but would have to biopsy them when they're active. Given that I'm gluten-free, I'm hoping it doesn't happen again! Is this what DH is like, though?

Any help would be greatly appreciated!

Thanks,

Lynne

Mine show up on the slightest contamination and last about 3 weeks, depending on how much I injest. Not fun

Oops, sorry Lynne, it really does sound like it!

It sounds like DH to me as well. Which begs more questions for me. I'm new to knowing much about this other than what has happened to me personally. Can DH blisters spread when the "pop"?

How long does it seem to take everyone from being glutened to breaking out. I had the stomach upset / D happen within 24 hours and then the blisters follow on days 2 through 5. What is everyone else's experience?

On the subject of healing: I bought sea salt and have been enjoying long sea salt baths - they seem to help . Does anyone have other advice for helping them heal? I know it seems to take weeks to heal them and the scares are not going away. Will the scares eventually fade or do you get to keep those...

Sorry for the all the questions at once, I seem to get one answer and have 7 more questions.

P.S. ... HAPPY NEW YEAR EVERYONE!

Mine actually show up before the D, but dry mouth shows up first, so I imediately know to quit eating what ever. I think I'm fortunate in this that I can spot right off when somethings not right and prevent myself from eating more than a tiny amount. I think it is different with everyone, which makes the disease so hard to predict.

For the very persistant blisters, you may have to go to your doctor and get Dapisone (sp)

Hi... I'am new to site but saw u get them on ur feet also .
tell me more plz, we get them too on our feet and they itch like crazy for a couple days then the blisters show up and if u pop them white (clear) liquid comes out, but if u don't pop them they hurt so bad just was wondering wht u put on ur's? I allso get tons of hives daily but not sure if it's gluten or Plastic's we r still doing gluten waiting for testings to be done

Sounds like DH to me Lynne. My face is a mess because that is the main place I break out with it and I hate it. I want to walk around with a bag over my head because I look like a leper.

I seem to get them mostly just under my nose. But any where on the face is a drag. Of course I'm sure everyone thinks I have herpes, but did test negative for that. Seems to take a good 2 weeks for it to disappear and then leaves a purple mark. Nothing seems to really help it heal that I've found.

Minor glutenings for me is in the corners of my mouth. Medium ones start in the corners of my mouth and go all under my bottom lip and around the bottom of my nose. The bad ones also go to my eyelids and under my eyes. Imagine how pretty I am then.

Wow, this is the first I've heard of DH being blister like, but i never really looked before... didn't think I had it. I often get tiny pimple like blisters when I eat gluten. They are often small and around my moutn and go away in about 2 days. Thye hurt like mo fo though.

Cool, i learn something new every day!

Many are like yours and mine, little pimple blisters that like to expand. I know some who get absolutely huge ones right off the hop. Anyway, no matter how you look at it to me it is disgusting.

That is the truth. I get them along my lower left eyelid from traces of gluten. They are so annoying. I went through a stage of what they called adult acne a few years back. I never had a problem as a teenager. It sure make one feel ugly when Dh has to pick the face.

Fascinating topic. I get spots, and blistery things, never thought for a moment it was DH, because they don't seem to be itchy and there is never ever more than 5 or 6 at a time, but I have always associated them with having eaten gluten as that is when they show up within a few days. The blistery spots don't hang around for long, but the bigger spots are quite sore for a few days and leave purple marks which stay around for absolutely ages before fading out. My husband describes the as "one of those spots". Now I am beginning to wonder if it is DH.

At times my skin crawls and is quite itchy, but never the spots.

Cathy

My skin gets the crawly feeling if I get glutened. I can feel a blister before it breaks outs. It is a kind of itchy burny feeling. I don't seem to itch as bad from them now that I've been gluten free since the beginning of the year. I'm not sure if that makes the difference or not. A year ago, I had blisters for months. Was told it was poison ivy, eczema, impetigo. Nothing really helped. It was so itcy.

For me its just a rash on my upper arms that does itch and lasts for about 2-3 weeks. Before going gluten free it was on my back, face and scalp among other places. Just like every other symptom, it spreads and gets worse the more consistently I ingest gluten - accidentally or not. I don't know if it helps, but when its particularly bad, I rub some vitamin E and A oil on it. If anything, that's supposed to help with the scars.

Try cocoa butter too. It seems to help with the scarring. My daughter has DH and carmex and neosporin sometimes help - carmex when the rash first appears; neosporin if you scratch so hard that you break the skin - it seems to help keep any additional bacteria out of the open wound.

hi i get this itchy thing on my hands and feet, look like white calusus and itch and hurt like crazy, i also get this zitty looking thing on my legs and the back of my knees and elbows, lookls like little white zits, no fluid though, and last night they looked like little ingrown hairs. what is this? itches like crazy especially the ones on the back of my knees? any help would be great.

Before I was diagnosed, I would get the itchy blisters on my fingers and on the inside of my forearms.

Now, when glutened, I get a few around my mouth--they do hurt, but are nothing compared to the huge ones I used to get on my chin.

I have heard that JerseyAngel and Mouse had DH blisters on their fingers.

My blisters started on 5/14/07 with what I thought was a spider bite (looked like a spider bite and itched) by late day it had a small group of blisters on it. By the next day my fingers itched on the opposite hand, then both hands. Every day they would alternate which hand, always middle and ring fingers. They itched before they errupted- I knew when it was coming. My hands burned and felt electric, I kept them over the Air conditioner while driving and held onto frozen corn at home. My doctor gave me a progesterone shot 5/19/07 and said it was Poison Ivy. I tried to tell him that this was no poison Ivy and the blisters came semetrically one at a time (this did not matter to him). The blisters healed, but more itchy spots occured on my legs and hips these just had itchy areas that turned into little red/pink dots. (on both sides, but the right more than the left).

Since my blisters are gone is it too late to get tested?

Does anyone else know about this electric tingly feeling (burning stopped) in fingers and when will it go away!

what you are describing the pimple like thing on you knees could be karatosis piolarsis. I have it all over my body. had it since I was little

I am right now expreriancing on my left hand which it comes and goes for as long as I can remember it will also go to my right hand too but for now on my left. It is itchy for sure and I do have blisters which have gone done quite a bit since I took a shower before coming to work but is still there. Yesterday I had to look at my hand where the blisters are and it felt like I had some kind of bug crawling on me it felt wreid. So I made a doc appointment with my primary doc also to get a check up because it has been a year since I had any blood work done so hopfully he can look at it and tell me which im sure he won't be able too, because he didn't know what celiac disease was last year when I told him that I had a problem (to get a referral and all)

Donna

one word.... RETIN-A

sorry cant use that i get hives with that

donna

I had a scar on my hand from a gluten antibiotic IV - SINCE Dec.

Mine has just gone away since I started watching like a hawk with what I was putting on my skin at all times. I am only using botanically based lotions that are gluten-free.

Watch carefully what you are putting on your skin...anything from hand cream to soap, could be just about anything affecting you that has gluten in it that is geting through your skin. Watch your labels, call the companies - they like to say they don't add any gluten - but then when you ask about the products they get from other companies they add into the product the story changes, they can't be sure, or they say they don't regularly test for gluten. Be safe, check everything and then stay with what works!! ( Mineral oil and petoleum may make you smoother, but it is actually harmful)

Oh my $&@*!

Could this be it! You all have no idea what I have been living with and going through the past year of my life.

Long story short, since last January I was under extreme stress and trauma and had a bit of a breakdown due to a very sad event and a short while later I broke out in this painful rash that seemed like blisters almost all over my face and it was pretty much symmetrical.

I have been on Minocycline, Doxycycline, Bactrim DS, Accutane and various topicals that help to keep it somewhat at bay but it is still there and flares viciously from time to time and is the worst burning I have ever felt.

Nothing works on these blisters/lesions and they sting something awful.

The doctors do not know, have been told possibly shingles, but prednisone and valtrax did nothing.

I also get these sores in my mouth on my tongue.

I was diagnosed with Celiac through symptoms as a child and put on a gluten free diet for 6-8 months which cleared symptoms. Symptoms included, stop in bone growth and weight gain, diarreah, terrible blistery rash on my rear end, all at the age of 10 months.

Since my symptoms seemed to go into remission, the doctor introduced gluten back into my diet at 2 years and watched me unti lI was 10 to make sure growth etc. were normal and they were.

If this is what I am dealing with you have no idea how happy I will be (sounds funny doesn't it). I have tried every medication possible (although not dapisone) and none have cleared things, they always come back in the same area, terrible burning and I get the creepy, crawly, stinging feeling a day before so I know its coming.

If it is all gluten I will be so happy because I will be able to eat the correct diet and rid this terrible blistery pain for good!

What do you think of my situation...possible? I can answer further questions and details if that helps anyone.

I already started to cut back on Gluten and see the Gastro in 2 days. SHould I keep eating the Gluten now so if/when they do a biopsy they will be able to tell?