DID ANYONE ELSE SEE IT?

lOVED HER 'BUCKET ANALOGY' AS TO WHY WE WITH POOR IMMUNE SYSTEMS CAN'T DEAL.

I FELT THEY DID A WONDERFUL JOB OF KEEPING ON TRACK WITH FACTS ON SUCH A COMPLEX ISSUE.

LOVE TO HEAR OTHERS IDEAS.
MAYBE THE DRS WILL FINALLY SEE HOW THE ---"FOOD- GUT -BRAIN"--- CONNECTION IS SUCH A MISSING PIECE WHEN THEY TRY TO DX US.
JUDY

I saw it and thought it was excellent. I think Jenny McCarthy is one smart lady.

I did pause when they first mentioned the gluten-free diet--I wondered if anyone would make the connection that Elizabeth eats gluten-free also.

I guess they had so much to cover in a limited amount of time....I thought it was great, though and everyone seemed prety open-minded about it.

I also see Jenny McCarthy on the cover of People this week. Good for her getting the word out for all those moms and families

I saw it also and I thought Jenny was simply amazing! She really hit the nail on the head when she said "Anyone that doubts the gut to brain theory, I would like to challenge them to prove it in a bar - just go and have some drinks and tell me what whether or not what goes in your gut doesn't affect your brain"..... AMAZING!!!!!!!!!

I was really disappointed in Elisabeth though - she had the perfect opportunity to kind of validate Jenny's point of view by saying "Hey, I get ya, look what gluten does to me and to all celiacs".... but SHE DIDN'T OPEN HER MOUTH! I was amazed that she missed the chance not only to plug celiac again but to put additional weight behind Jenny's argument that gluten-free/CF works!

Sheesh!

I

We never know what happens in prep for a show..perhaps Elisabeth had discussed it with Jenny and since the interview was about the impact of GFCF diet on autism - To bring up celiac may have clouded the issue and have viewers thinking autism is really celiac - a leap I know - but I have had that happen with me when trying to explain the impact of gluten-free diet with kathryn - I was asked - so she's celaic not Asperger?? Then I had to try and tell them - she is both..which led ot confused looks.
gluten-free diet works with celiac because it is a medical condition. GFCF diet works with autism because of the brain/gut connection and a high number of people with autistic spectrum disorders are missing enzymes to digest gluten and casein - but it is not autoimmune. Two separate conditions with similar treatment and should probably be discussed separately if time is limited.

They only have a certain amount of time and Jenny likely wanted the focus to remain on the diet and the huge impact on autistic individuals.

How often does anyone get on the air to talk specifically about celiac and fail to mention its benefit to the autistic ?
Best to stick with one topic - easier to digest sorry had to insert a little pun

If anyone wants more info about diet and autism google: GFCF diet and autism

Sandy

I also saw it and I thought it was AMAZING to see these issues and the gluten free diet discussed on the View! Woohoo! Progress! I just bought Jenny's new book to support her....

I'm glad others saw it also...

She is an 'electric' personality!
Any attention to the gluten free & dairy free diet ( a big plus) will bring it more 'out there in the main stream of conversation.'

Maybe others will finally see that we've been trying to share for so long. Judy

Anyone wanting hard, cold facts and published medical articles on the subject, go here:

http://www.autismndi.com/news/display.asp?...=20040721150209

Oh, I bought the book too! But I haven't read it yet, I brought it over to a teacher who taught the boys last year. Her twin boy has been diagnosed with autism.

Karen

I wish I wasn't at work, but hopefully my future aunt saw it, she has an autistic child.

Judy, thanks for sharing about the View.

Numerous people have mentioned to me that they heard her talk on Oprah about it (last week?) so its great people are listening.

I saw it and thought she was great! I was so happy she mentioned the gluten-free diet!

I don't ahve aproblem that Elizabeth didn't mention being gluten-free the interview wasn;'t about her it was about Jenny and her son and autism. I figure if she can help a child with autism that is great. Maybe just maybe some one out there was watching and looks up the gluten-free diet and sees Celiac and realize that could be the cause of some of thier health issues too. Then that means Jenny did a great thing!

I missed the show but I agree that bringing up Celiac might confuse the viewers. Also some parents might get the impression that the diet only benefiets those autistic children who might also have Celiac.

They really are two completely seperate conditions. Its great that Jenny is getting the word out to the parents that the diet can make a huge difference.

I'm half way through her book "Louder Than Words". I've done alot of research on Autism but reading this book is actually giving me an understanding of what its like day to day for Jenny and other parents of autitic children. Its a great book....she writes well...at times it is heartbreaking.

I hope with her story other parents will see that there are options and that there is healing that takes place outside of mainstream medicine...these conventional Dr.'s have nothing to offer in treating Autism.

I didn't see this show, but I did TIVO Oprah and need to watch it.

It does make me sad, though, because I know a couple of people who have Austistic kids. I've mentioned to them that in my quest to help Carleigh feel better that I've seen a lot on the how much some Autistic kids benefit from the gluten-free/CF diet. I told them that I could help them if they wanted to try it. Neither one took me up on it. They both told me, "No. That's too much work for me." Hello?!?!

Yea, that is sad.

Cheri A
your so sweet to care so much
depending on how well you know them...you could pick the one your closest too and get her the book or try to ck it out of the library for one and maybe they will read and 'GET IT'
JUDY

THIS IS THE WHOLE POST FROM juliem on the 'OMG' THHREAD--------------
I JUST WATCHED 12 MINS AND IT'S SO GOOD

Julie I hope your don't mind me sharing it here
alot of people will be helped. Thanks so much for taking the time to post
Glad to see you around again.
judy
______________________________________________________________

HEY, quick announcent, although nobody seems to be around....

Jenny McCarthy and Holly Robinson peete are on Larry king Live right NOW (10:30 pm mst), although it's pretty much over, I wish I would have caught it earlier. BUT, you can go to the website and get info about what they talked about, LOTS of alternative stuff and a DEMAND for mainstream medical to acknowledge the fact that autism is being diagnosed at an alarming rate, epidemic levels, and vaccines, heavy metals, bacterias, viruses, fungi, yeasts, molds, the typical American diet, etc. all play a role.

Here are the links:

http://www.cnn.com/CNN/Programs/larry.king.live/

http://www.cnn.com/2007/US/09/24/jenny.aut...iref=newssearch

http://www.talkaboutcuringautism.org/index.htm

http://www.autism-society.org/site/PageServer

http://www.talkautism.org/

Words cannot even describe how happy I am that this is FINALLY getting out there.

Autism *is* an epidemic and hopefully more and more people will turn their backs on the medical community that continues to do *nothing* to get these kids better. The alternative treatments are working!!

Its not just the kids who are suffering from the issues mentioned.....many of the adults diagnosed with Fibro, CFS, IBS, plus autoimmune diseases across the board....are dealing with these same issues behind their chronic illness.

Western medicine isn't doing anything for Autism and they arent doing anything for the adults who are chronically ill. Its about time that someone is demanding acknowledgement from the medical community and taking it to the media.

Go Jenny!

The only way change is going to take place is if people dont continue to settle for the BS that the medical community has been dishing out for so long now.

Speaking as a mom of an autistic child - the day to day living with it and coping with the interventions and dealing with school, sensory issues...is can be exhausting and the thought of starting someting else may just be mentally overwhelming and they feel they cant handle one more thing. Perhaps get them the book and give them a list of foods readily available - fruit, veges, name brands of gluten free dairy free meats...and leave it with them to look over.
When Kathryn was diagnosed celiac and we HAD to go gluten-free, there was no option - I just did it, and was amazed by the transformation. But this diet is a lot of work initially with the reaserch involved, reading labels, identifying hidden sources...
They may just need more support in trying the GFCF diet... some parents are more motivated because they have family support. We never know what extended family says or how much or how little support they have with the autism in their lives.
SANDY

If you want to hear some of the Larry King Show with Jenny McCarthy and others - here is a 9 minute video. There will be a short advertisement, then the video will begin.

http://www.cnn.com/video/#/video/bestoftv/....treatments.cnn

I saw Jenny McC. on Oprah. At first I was a little put off by her almost "my son is cured" attitude... but the more she talked the more I was fascinated. The most chilling point for me was when Oprah asked her if she had an idea how her son's autism occurred... to what did she point to as the cause??

She said she was at the doctors when her son was about 2 to have his MMR vaccine and expressed her concern to the doctor, "I've heard this vaccine is the one that might cause autism." The doctor blasted her and said there was no scientific evidence and she had to have her kid vaccinated! She said that she said a prayer and had it done... and then she said a few month laters she WATCHED the life go out of her son's eyes. She said ANY mother would see it in their own kid too!! It gave me goosebumps!!!

She wasn't saying that vaccinations aren't necessary. She just said that the "one size fits all" method of vaccinating is not good. Don't know what the alternative is, but I was mesmerized by what she was saying!

Thanks Judy for getting these links posted here! I didn't realize there was already a thread started about the Jenny McCarthy/autism issue.

Great post Rachel, very well said! Rings true for me and so many others on this board battling with chronic illnesses that go beyond celiac/gluten intolerance.




Hi luvstoeat, this really stood out for me too.

I was forced to get an MMR vaccination at the age of 18 before they would allow me to attend the college I was accepted to, I guess the MMR I had as a child was before a certain date (or after a certain date, I can't recall exactly what the discrepency with my vaccination records were).

My immune system I believe at that time was already compromised, I had a few issues but other than that I was generally healthy. 2 months later I got extremely sick with what I thought was the flu and things just snowballed from there for me. I developed multiple food, chemical, environmental allergies/sensitivities, I was diagnosed with CFS and FM and other auto-immune conditions, my body was shutting down and my life basically stopped. That was the beginning of my journey on what has been a long, long, long road trying to find answers for health issues that mainstream medical doesn't seem to want to address, let alone acknowledge, or begin to try to find a solution.

I am also thankful that Jenny McCarthy, and other mothers and fathers, who are trying to get this information out there to the public. I hope this gets the ball running, let the discussion begin!!

I did some research on the MMR. The reason 2 doses are required is that 5% of the children who receive the first dose do not mount an immune response. I could not find any studies indicating that the second dose is effective for those 5%.

And the 95% who don't even need the second dose are supposedly required to have it because of those 5%.

If anyone is wondering where I found this information, it was on Merck's own website. (Merck produces the MMR.)

I believe the reason that doctors are saying that there is no scientific evidence linking vaccines and autism is that the pharmaceutical industry is covering it all up. We already know that the Denmark study that they keep quoting (that supposedly exonerates vaccines) is flawed--they took the autistic kids OUT of the study, and then said, "See? Vaccines don't cause autism!"

for more info, you can look up www.nvic.org.

I know what you mean......my daughter does not have an autism diagnosis, but I truly believe it is only b/c she was lucky enough to be diagnosed with Celiac early on. She is still in therapy for speech and language, but she is making fast progress.

In going to her therapies, I've come across families with autistic kids, and the diet has come up a few times. I have heard "it's too hard" or "too expensive", and I just really have to bite my tongue to not say anything else! I have found that some people flat out do NOT want to hear any talk about the diet success, which can be very frustrating!

I LOVED Jenny on Oprah, and I was in tears while watching her. I'm so glad this is finally getting the recognition it deserves, and I hope she gets continued support. I am now a huge fan!!!!

THOUGHT THIS WAS A GREAT NEWPAPER COVERAGE.........JUDY

Experts suggest link between autism and diet
Updated Fri. Sep. 28 2007 10:31 AM ET

CTV.ca News Staff

Autism experts descended upon Parliament Hill Thursday, calling for more research to be conducted into the possible link between a specialized diet and the developmental disability.


Many parents have reported anecdotal evidence suggesting that a dairy and gluten-free diet may reduce the symptoms of autism.


Fannie Decaria says at one point her son, Guilio could hardly speak. Then she cut wheat protein and dairy out of his diet and she saw improvement within days.


"I swear, within a week my son started to speak more," she told CTV News.


Actress Jenny McCarthy wrote a book discussing the success she's having in feeding her autistic son a diet free of gluten, wheat and dairy products.


Critics say stories such as McCarthy's amount to nothing more than anecdotal evidence, and aren't backed by any credible scientific evidence. But some experts took their message to Parliament Hill on Thursday, arguing that autism is a public health crisis that deserves more study.


"I think what we are looking at is a transition from a behaviour disorder and brain disorder to a whole body condition," Dr. Martha Herbert of the Harvard Medical School told a press conference.


Herbert and some experts say it's time to conduct scientific research into finding out if there's something more to the anecdotal evidence. They want more money to study the link between processes in the gastro-intestinal system and behaviour.


It's research that Derek McFabe of the University of Western Ontario has already started. He says that his studies of rats suggest that there may be an indirect link between some food and autism.


Officials with Autism Canada say that with an increasing number of children are diagnosed with autism, studying diet and the disease is crucial.


Researchers hope that more research will give parents of autistic children more information to decide if they should switch their child's diet.


McCarthy said she noticed that her son's eye contact and vocabulary noticeably improved within weeks as a result of being on the wheat and gluten-free diet. The children's cartoon "SpongeBob SquarePants" did not usually connect with her son Evan, but when he laughed at something "very abstract and funny" while watching it, McCarthy said she knew it was important.


"That was my big moment ... I call it kind of opening the window and pulling him out of the world of autism," McCarthy told CTV's Canada AM.


With a report from CTV's Genevieve Beauchemin

I agree that the vaccines play a role but it would not be difficult for them to rule out vaccinations as a direct cause since there are other triggers...and not every child with Autism has been vaccinated.

Some children are born already showing signs of Autism and some parents who have chosen not to vaccinate their children have not been able to prevent autism from occurring.

I believe the immune system in these children is already compromised and certain triggers (vaccines being one of them) suppresses the immune system even furthur.

McCarthy mentions some of this in her book but does not get into alot of detail about it.

The MMR is the most linked to Autism. These live viruses should be targeted by the immune system under normal circumstances...but in these children (who have compromised immune systems) the immune system fails to fight of these viruses. The measels virus ends up active in the gut and also traveling out of the gut into other areas of the body..inculding the brain.

If all cases of autism could be linked to vaccines it would be less controversial but unfortunately with other triggers out there....they can continue to deny a direct link to the vaccines.

PS
I'm just about done reading Jenny McCarthy's book.....for anyone who's thinking about reading it I give it 5 stars!

Sandy, you make a very valid point about the exhaustion and day to day living that they may feel. I had not thought about it from that point of view. Thanks.

Maybe I should buy them a bag of Tinkyada pasta and some of Carleigh's favorite store bought stuff or a few frozen meals to try.

I guess I was thinking more from my point of view with Carleigh. I had reached the end of my rope. She didn't sleep, she had bleeding eczema, tummy hurts all the time and bowel troubles. I was willing to try ANYTHING to help her.

Rachel ~ ITA with you on this!

When we were at the end of our rope two years ago with Carleigh's health issues, I found an allergist three hours away that treats with sublingual therapy (drops under the tongue). This has been done in Europe many years succesfully treating people with allergies. Combined with eliminating gluten, she is feeling much better.

Along with the diet restrictions I'm mainly doing alternative/biomedical treatments for my health issues. Alot of it is similar to what McCarthy has done with her son. My Dr.'s specialize in chronic disease as well as autism....since working with them I have made alot of improvement.

I'm glad your daughter is feeling better too.

Yes, but I don't think vaccines can be ruled out as a factor since the parents, especially the mothers, likely HAVE been vaccinated, and if the vaccine is still "live" in the mother while she is pregnant, it can cross the placenta.

When I was pregnant with my oldest son, my doctor was very angry that I hadn't been given an MMR before getting pregnant--he insisted on giving an MMR to all his women patients who were trying to get pregnant, and if the titer he did on me while pregnant had been negative, he would have insisted on giving me an MMR while I was pregnant. Apparently, this was standard practice in the '90's, at least here in PA.

Who knows, maybe being given a titer while pregnant could trigger something...

Women who are pregnant should not get an MMR....its not recommended. Hopefully most Dr.'s would know that. Of course...as we all know...there are way too many uninformed Dr's out there who make very bad decisions.



As far as a cause for these children having weakened immune systems at birth I'm leaning toward Borrelia...the bacteria that causes Lyme Disease. Up to 90% of Autistic kids (that were tested) have been positive for Lyme. Most of these kids are born with the infection...it does cross the placenta. In most cases the mother is asymptomatic and not aware of any exposure to the bacteria....but when tested she is positive.

Borrelia can sit at the blood brain barrier and is considered the "gatekeeper" to let in other infections. This is where the live viruses can easily access the brain in a child who has a Borrelia infection and as a result is immunosuppressed.



There is one study underway which is looking into a Lyme/Autism connection. If the results suggest that there is a connection....hopefully there will be more funding for furthur research into this link.

I work for the CTV affiliate in Calgary. The script for the VIDEO report that goes with JudyinPhilly's web report is below. I watched the story last night, and was pleased until I saw Genevieve's standup. I used bold for emphasis in the quote below. I wonder if people who saw the video may focus more on Genvieve's standup rather than the anecdotal information from Guilio's mom and Jenny McCarthy. I took out all of the video directions, so anything surrounded by (( )) is a clip of a mom, Jenny, an offical spokesperson, or the reporter.

thanks Linda.
If you work for the station...do you happen to know this woman you quoted in the thread? Just courious.
I went back and found the link and it has the article and on the right side of the page is a link to the video.

http://www.ctv.ca/servlet/ArticleNews/stor...0928?hub=Health

I just put the article so people wouldn't have to go get the link.............missed the video........but just watched it now. Seems they have support but for the reporter......hummmmmmmmmmmmmm?

If Parliament is looking that's good tho.

what do you folks think?
Judy

EDIT.......JUST WENT BACK AND WATCHED IT AGAIN...............NOT HAPPY WITH THIS REPORTERS ATTITUDE WHICH,,,,,,,,,I THOUGHT SHOULDN'T BE PROFESSIONALLY INTERJECTED ..........IMO........

THEN I READ SOME OF THE RELATED ARTICLES..............OH MY..................
RACHEL.........SOME WILL MAKE YOU 'BOIL' MY DEAR FRIEND.

HERE IS ONE ON THE CDC LATEST REPORT.............IMPUT FOLK...?

http://www.ctv.ca/servlet/ArticleNews/stor...me=&no_ads=

No, Judy, I don't know anyone in the story. I work (behind the scenes) in Calgary, and Genevieve is on the other side of the country in Montreal. I just thought it was important to mention that in the video report she kind of downplayed the link between autism and diet.

THANKS LINDA....

I SO AGREE WITH YOU .................YOU BET YOUR BIPPY SHE DID..........GRRRRRRRRRRRRR
THANKS FOR LETTING US KNOW SOME GEOGRAPHY LESSON TOO
I GUESS I'M NAIVE.........I REALLY DID THINK THAT REPORTERS SHOULD KEEP PERSONAL OPINIONS OFF THE REPORTS............................BUT.............THAT'S MY PERSONAL OPINION AND I'M STICKING TO IT.
KEEP YOU EYES ON THIS FOR US WILL YOU?
I FOUND THIS ON SOME CELIAC REPORTS I GET.........DON'T EVEN REMEMBER WHAT LIST NOW.

FOUND IT

Google News Alert for: gluten free

Experts suggest link between autism and diet
CTV.ca - Canada
Many parents have reported anecdotal evidence suggesting that a dairy and gluten-free diet may reduce the symptoms of autism. Fannie Decaria says at one ...
See all stories on this topic

JUDY, I THINK OF CTV IN CANADA AS LIKE FOX IN THE STATES, I TAKE EVERYTHING THEY SAY AS VERY BIASED.

I THOUGHT IT WAS INTERESTING THAT THE AUTISM ASSOCIATION DIDN'T WANT THE CDC DOING ANYTHING AS THEY DON'T TRUST THE CDC. THAT SAYS TO ME THAT THEY HAVEN'T BEEN CORRUPTED AS IS SO OFTEN THE CASE WITH GROUPS THAT START OUT GRASS ROOTS.

I HAVE NO REAL CONFIDENCE THAT ANY OF THESE LARGE PLAYERS, WHO BENEFIT FINANCIALLY FROM THIS , ARE GOING TO EVER SUPPORT DIET AS A REAL TREATMENT UNLESS THEY CAN PRESCRIBE THE DIET AND CHARGE FOR IT.

I SAW JENNY ON OPRAH, THE VIEW AND LARRY KING AND WAS IMPRESSED BY HER CLARITY AND PRESENCE. PEOPLE CAN SAY WHAT THEY WANT BUT ANYONE REALLY LOOKING WILL SEE A MOTHER WHO HAS RECLAIMED HER CHILD FROM A SYSTEM THAT WOULD HAVE SEEN HIM DESTROYED AND THAT IS THE TRUTH THEY CAN'T DENY.

GO JENNY.

Renni.............thanks so much as this say it all to me..........JUDY, I THINK OF CTV IN CANADA AS LIKE FOX IN THE STATES, I TAKE EVERYTHING THEY SAY AS VERY BIASED.

Sorry Linda.........it's kinda a 'in joke' in USA but please don't take it personal since you work for them. We know you're with us on this topic

#2. & 3--- ditto 100%

I've seen all the shows too and I agree with last paragraph.
No one is going to stop our Jenny.........In the video she's so careful to keep saying..............ya da ya da ..'NOW THIS WORKED FOR " MY CHILD" I'm saying what worked for my child...so PC but into days world might keep some of the negative Nellies off her back.

thanks Renni

jUST HAD TO POST THIS WHEN I SAW IT TODAY.....
IT'S OLD NEWS TO US...... BUT I HAD TO LAUGH AT THE QUESTION. LOVED THE PHARMACIST RESPONCE AND IT WAS A GOOD OVER VIEW.

Dear Pharmacist

Q: I saw Jenny McCarthy on "Oprah" talking about her son's autism and how changing his diet helped him. She talked about a gluten-free diet. How can gluten matter to the brain so much? We're just talking about a loaf of breadE.C., Fort Lauderdale, Fla.

A: Gluten is the protein in wheat products, found in most breads, pastas and pastries. It's also found in rye, barley and some oats (because oats are often milled in factories that process other grains and get contaminated). Most people eat all these whole grains, so what's the big deal?

Such foods are a big deal if you're sensitive to gluten, like Elizabeth Hasselbeck from "The View" and millions of other people in the U.S. with neurological diseases or intestinal problems like Irritable Bowel Syndrome (IBS) or Celiac sprue. In sensitive people, gluten causes a bad reaction, where immune system cells find their way out of the intestine, hitch a ride in the bloodstream and glue themselves to various organs in your body, especially the brain and spinal cord. Your body then attacks the "foreigner" now glued to your own tissue, hence the term "auto-immune" or "attack of the self."

There are many auto-immune disorders such as Lupus, Chronic Fatigue Syndrome, Sjogrens Syndrome, Multiple Sclerosis, Graves' disease, Hashimoto's and Rheumatoid Arthritis. Some experts feel strongly that an underlying allergy to gluten (or the dairy protein, casein) could be a source of neurological insult and auto-immune dysfunction.

In the case of autism, some experts theorize that the condition results from brain insult from vaccinations, or mercury (thimerosal), the preservative in vaccinations. Often, putting autistic children on gluten-free and casein-free diets helps ease symptoms. Anyone with food sensitivities or auto-immune conditions should visit livingwithout.com (they also publish a magazine). Those with Celiac sprue should visit csaceliacs.org or glutenfreeforum.com.

A good online resource for gluten-free recipes is gluten free.com. You can buy gluten-free foods easily at health food stores, Whole Foods Market and Wild Oats Market, or online from Glutino, De Boles, Tinkyada, Orgran, Pamela's Products, Mona's, Ener-G and Bakery on Main. There's a longer list of gluten-free companies and more information about all of this on my Web site (dearpharmacist.com), including popular restaurants that offer gluten-free menus.

So how can a loaf of bread be one man's meal and another man's poison? Follow the trail of crumbs to the brain, and see how destructive gluten (and casein) can be to sensitive people. To test for these sensitivities, ask your doctor for an Anti-gliadin IgA Antibody test.

This information is not intended to treat, cure or diagnose your condition. Suzy Cohen is the author of "The 24-Hour Pharmacist." For more information, visit dearpharmacist.com.

Great answer from the Pharmasist