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Gluten-Free Celiac Disease Forum at Celiac.com (Home) > Celiac Disease Gluten-Free Diet Forum at Celiac.com > Celiac Disease - Related Disorders & Research
AliB
Now here's a thing.

I am an analyst. Not by vocation, by nature. I have a questioning nature. I have always needed to have answers. I read, I absorb, I filter, and I cogitate.

Diabetics get neuropathy. Amongst other things. Undiagnosed Celiacs get neuropathy. Amongst other things. The neuropathy experienced by Celiacs is due to malabsorption. Namely, Vitamin B12 but may also be compounded by a deficiency in other things.

Neuropathy in Diabetics is shrugged off as a 'symptom of Diabetes, particularly uncontrolled'. Very rarely (particularly here in the UK) is any blood testing done to look for deficiencies, and in any case, what is considered 'normal' levels is still, sadly, probably due to a lack of research, still a very inexact science. The level my body functions happiest at is not necessarily the same as yours and because (I believe) Gluten Intolerance due to over-exposure is so widespread, whether low-level or higher, even so-called 'healthy' individuals who are used as controls in any research, may even themselves not be displaying optimum nutritional levels!

I do not believe that we can separate Glucose Intolerance from Celiac Disease. Celiac is a progression of GI. Some individuals have a genetic leaning toward Celiac and that is what they, if the GI is not addressed early enough, at some point will develop. Some will have genetic vulnerability to other diseases. Some people's GI will eventually trigger other ailments/diseases, depending on their risk factors - their vulnerability, and degree and range of malabsorption deficiency, such as Chronic Fatigue, Fibromyalgia, Rheumatoid Arthritis, Diabetes, Multiple Sclerosis, possibly even Cancer.

Why do I see over again, when I read the experiences on this and other forums, people saying, "I am Gluten Intolerant and have started eating Gluten-Free and amazingly, my CFS, FM, RA, Psoriasis, Migraines, Diverticulitis, IBS, Chocolate Addiction, etc., etc., has gone away, cleared up, disappeared. I am so much better". The key is Gluten.

Why am I not surprised? I do not look for complicated answers. I look for simple ones. The answer to this is so blatantly simple it has completely been ignored. If plain, ordinary, bog-standard Gluten Intolerance was taken far more seriously then maybe there would be an awful lot of people out there who would never end up developing the dreadful diseases that they find themselves having to cope with, costly drug treatments would be unnecessary and people would have a far better degree of health.

Am I the only one who can see this...............?
RiceGuy
Yes, and more. I answered this in the other thread:
http://www.glutenfreeforum.com/index.php?s...st&p=393372
Tim-n-VA
Since no one seems to agree what "gluten intolerance" means, it might be a stretch to say that celiac is a progression of GI.

There are multiple auto-immune diseases and they frequently occur in clusters. Jumping to the conclusion that one caused the other is different than saying that people with one should be aware of the other.

Just scanning the topics on this board, there seems to be a bit of that phrase "Give a kid a hammer and everything looks like a nail".

SurreyGirl
QUOTE (AliB @ Feb 3 2008, 06:37 AM) *
Am I the only one who can see this...............?


With you all the way AliB!

The various conditions are probably a result of genetic variability.
I am trying currently to understand what turns malabsorption into autoimmune diseases and so far leaky gut is one of the possibilities. And leaky gut can be caused by serious immune assault (the trigger, like serious illnes, vaccines or similar).

But what really makes my blood boil is how we get brainwashed into "gold-standard" celiac diagnosis - like if celiac was the only answer. My son would have failed that well and truly, I refused to go back on gluten because he improved so much and he has DQ1, when you have no gut symptoms but you still get neurological damage from gluten.

Thank God for some enlightened drs and this forum!
mftnchn
I agree that many who don't meet the gold standard for diagnosis are likely still celiac--and I place myself in this category. However, I agree with Tim about the caution of equating gluten intolerance with celiac because another reason for GI might be missed.

A couple of people I know on this forum have found their gluten intolerance due to another issue and have successfully been able to return to eating gluten.
AliB
QUOTE (SurreyGirl @ Feb 3 2008, 07:47 AM) *
With you all the way AliB!

The various conditions are probably a result of genetic variability.
I am trying currently to understand what turns malabsorption into autoimmune diseases and so far leaky gut is one of the possibilities. And leaky gut can be caused by serious immune assault (the trigger, like serious illnes, vaccines or similar).

But what really makes my blood boil is how we get brainwashed into "gold-standard" celiac diagnosis - like if celiac was the only answer. My son would have failed that well and truly, I refused to go back on gluten because he improved so much and he has DQ1, when you have no gut symptoms but you still get neurological damage from gluten.

Thank God for some enlightened drs and this forum!




I think you are absolutely right about 'leaky gut'. That sneaky little Candida (and other similar yeasts) have a lot to answer for, but at the end of the day, they will only get out of control if we allow them to. Some of us seem to have a disposition that finds it hard to process sugars and carbs and the yeasts take advantage of that.

We are a very sick society. Whilst there has always been disease, we are now plagued with things that were unheard of in history. I believe that most of this has come about over the last few centuries as sugar and carbohydrate has become such a huge consumption. We are surrounded and overwhelmed by sugar and stodge. The concept, except for within a very few (pretty healthy!) groups in the World, of not eating sugar is just unheard of.

Whilst sweetness may have been consumed occasionally in the past in the form of honey (the real high-value McCoy, not from sugar-fed bees), most of what was eaten was savoury protein and fats (Nomadic tribes and Eskimos have lived on a protein and fat diet quite happily for centuries!). Carb in the form of fruits, veg and bread (in its low simple chromosome form, unlike the modern complex protein form today) may for some have been a regular but certainly not over-exposed food group. Today we are over-exposed to way too much, especially to high carb, empty calorie sugar and wheat-based foods and derivatives, not to mention the chemical additive bombardment. It is killing us.
DingoGirl
QUOTE (AliB @ Feb 3 2008, 02:37 AM) *
Am I the only one who can see this...............?


smile.gif No, most decidedly, no. Most of us here see this...but unfortunately, most DOCTORS do not.........no money in it for them.


QUOTE (AliB @ Feb 3 2008, 04:21 PM) *
We are a very sick society. Whilst there has always been disease, we are now plagued with things that were unheard of in history. I believe that most of this has come about over the last few centuries as sugar and carbohydrate has become such a huge consumption.


And do not forget about MSG - one of the vilest of all the evils. I don't know about its use in the UK - but in America, it's everywhere, and it's one of the major causes of the morbid obesity we are seeing more and more.

Yes, we ARE a very sick society.....we really need to get the word out, as much as we can, about the evils of gluten, sugars, and chemical additives.....doctors aren't going to tell people.
ccrrgn
QUOTE (AliB @ Feb 3 2008, 02:37 AM) *
Now here's a thing.

I am an analyst. Not by vocation, by nature. I have a questioning nature. I have always needed to have answers. I read, I absorb, I filter, and I cogitate.

Diabetics get neuropathy. Amongst other things. Undiagnosed Celiacs get neuropathy. Amongst other things. The neuropathy experienced by Celiacs is due to malabsorption. Namely, Vitamin B12 but may also be compounded by a deficiency in other things.

Neuropathy in Diabetics is shrugged off as a 'symptom of Diabetes, particularly uncontrolled'. Very rarely (particularly here in the UK) is any blood testing done to look for deficiencies, and in any case, what is considered 'normal' levels is still, sadly, probably due to a lack of research, still a very inexact science. The level my body functions happiest at is not necessarily the same as yours and because (I believe) Gluten Intolerance due to over-exposure is so widespread, whether low-level or higher, even so-called 'healthy' individuals who are used as controls in any research, may even themselves not be displaying optimum nutritional levels!

I do not believe that we can separate Glucose Intolerance from Celiac Disease. Celiac is a progression of GI. Some individuals have a genetic leaning toward Celiac and that is what they, if the GI is not addressed early enough, at some point will develop. Some will have genetic vulnerability to other diseases. Some people's GI will eventually trigger other ailments/diseases, depending on their risk factors - their vulnerability, and degree and range of malabsorption deficiency, such as Chronic Fatigue, Fibromyalgia, Rheumatoid Arthritis, Diabetes, Multiple Sclerosis, possibly even Cancer.

Why do I see over again, when I read the experiences on this and other forums, people saying, "I am Gluten Intolerant and have started eating Gluten-Free and amazingly, my CFS, FM, RA, Psoriasis, Migraines, Diverticulitis, IBS, Chocolate Addiction, etc., etc., has gone away, cleared up, disappeared. I am so much better". The key is Gluten.

Why am I not surprised? I do not look for complicated answers. I look for simple ones. The answer to this is so blatantly simple it has completely been ignored. If plain, ordinary, bog-standard Gluten Intolerance was taken far more seriously then maybe there would be an awful lot of people out there who would never end up developing the dreadful diseases that they find themselves having to cope with, costly drug treatments would be unnecessary and people would have a far better degree of health.

Am I the only one who can see this...............?

HeyYou
With the analynical mind I will join you or just add to what you have said,
here is my history; was working so tired I would go and come with tears in my eyes, just plain tired
enter good Dr did tests could find nothing , said we will treat it like mono, had to go back to work after 6 month with many tests , no change. 10 yrs later new Dr. ask for test for chronic fatigue I had read about it, and by now fibromialgia had set in and could not work, he refused said "you don't want to know for there is nothing we can do for you". I was not happy being sick looking well and having no answers, so I pushed and was tested after 12 yrs . The results were positive, and I aplied for disability and was refused because I had been out of work to long and our wonderful CPPlan did as much as give me the finger. Oh well the Dr.s treated C.F.ers like leaches .
My sister and I went to a M.E. [Chronic Fatigue] meeting and half the women in my small town were there, these people had given up, We were not going to sit arround feeling sorry for our selves and this M.E. was not get the best of us . I was so fortunate that I had a sister that liked a good fight.
Over the next 3 yrs we studied nutrietian and would try any thing any one said that would help. In our search we found a few thing out that helped, we went from being bed riden 16 hrs a day and being absent minded to the point of not knowing if we had eaten or not,starting and to caring for 5 acres of gardens.Just when I thought it couldn't get any better I developed lupus like symtoms. By this time I had out lived another Dr. and the new one did tests for lupus results were positive. I was getting sores on my hands that seem to develope deep in the tisue and within 2 days I would have open ulcers on my hands, up to 30 at a time, he treated it with penicilin even though I told him I was alergic to it and I lost all the skin on my face,neck,feet,legs handsand arms, [ I prayed to die] but not my body only where I had been tanned.The dermatoligist said it was an alergic reaction to penicilin but because it was not on my body it was also related to lupus which my G.P. said I did not have O.K. Now if I have lupus I can not get travel ins.
Now I have developed D. H. I have at least 3 kinds of rashes on my body they have been identified as psorisas exzema and D.H. I really think that this prosses of immune illnesses has one origin,and I think you are right that there is one innitial cause and I hope we find it soon as I am getting dang tired of the fight. What we need is a few good Dr.s that do not have to scare everyone into thinking they are gods. I am sure I am not the only one that knows how many they kill every year. Sorry about that negativity. I am sure everyone knows that does not work.
In my studies I found out that in the U.S.A. a study was done on the nutritional value of the produce in 1929 and again in 1956 they discovered that the produce had lost 75% of it nutritien and in Canada the same study done between 1986 & 1996 and 25% was lost. Now if you take the 25% left in 1956 an decreace it by 25% every 10 Years scince then you will reallize where we have to begin. My daughter was left unable to care for herself let alone for her 4 children of which the youngest was 2.5 yrs old or to run her thriving busines. The baby is now 10 and my daughter not only survived but put her business back on top and sold it, as it was grooming dogs and was very hard on her health.Through determination nutritional suppliments and help from the Lord she is my insperation
Be inspired be thank ful for each new day. Every day we rise up in the morning ready to do battle with the negative forces that press in against us and thankful that we have freinds that stand with us. Knowing they will pick up the fight and continue.
My daughter had an accident that destroyed the front and center lobes of her brain as well as damaging her lunge & kidneys sheared her rotator cup on her right arm, broke her colar bone her shoulder blade and several ribs.Yes she lived and we have no reason why we should give up.


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