I'm already about 75% dairy free from my lactose problems, but now I'm going completely CF for a week or two to see if I feel better. I am starting to feel sick again- headaches, and I still have that stomach bug (but I can keep fluids down OK now and I'm not dehydrated, but I will be seeing the doc tomorrow).

I'm starting to feel a bit like I did pre DX. My knees and hips are sore, my hair is falling out really easily and I'm exhausted. So out goes the casein. I'm also soy-lite: no soymilk or tofu or anything fried in soybean oil, although I do still eat foods with soy lechitin. If going CF doesn't help after a few days, I'll try completely soy free too. I could also stand to eat a little healthier than I have been.

But do I need to be as careful about casein as I am with gluten? Should I be worried about CC?

Thanks everyone for your advice

I have found that being as careful with casein as I am with gluten makes a difference. I've been 90% dairy-free since August and 100% since October. When I do get a little bit of dairy I know immediately - my sinuses flare up, I bloat and feel cranky for several days. It's almost like a gluten reaction to me, but not as bad.
Have you kept a food/symptom journal to see if there may be other offending foods?