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Alvine Pharmaceuticals Obtains Patents For Celiac Disease Therapies
Gluten-Free Celiac Disease Forum at Celiac.com (Home) > Celiac Disease Gluten-Free Diet Forum at Celiac.com > Celiac Disease - Publications & Publicity
patriceo15
I get got this in my email thought I would share with everyone if you have not seen it yet

http://www.wallstreet-online.de/nachrichte...ht/2278501.html



http://biz.yahoo.com/bw/080221/20080221006180.html?.v=1
Gemini
QUOTE (patriceo15 @ Feb 22 2008, 09:18 PM) *
I get got this in my email thought I would share with everyone if you have not seen it yet

http://www.wallstreet-online.de/nachrichte...ht/2278501.html



http://biz.yahoo.com/bw/080221/20080221006180.html?.v=1


The problem I have with these articles is that they always state the only treatment for celiac disease is a strict adherence to a gluten-free diet and that the diet is very difficult to follow. I just do not agree with that at all. Once it is mastered, I have not found this diet difficult at all. For me, being able to eat a good, varied diet without getting horribly sick, and done without any meds, is a gift in itself. Telling people who are not Celiac, or those who are undiagnosed, that the diet is difficult produces a mindset that is not good to start with. If you tell someone it's horrible and difficult to follow, it will be for them.

As far as a pill for Celiac, it's not even a consideration for me. I just doubt that a pill will be able to shut off the autoimmune reaction to the point where there will be no damage. Plus, I would bet that this medication will cost a bundle, all so people can eat crappy, fast food again? Look at what other meds cost and with the lure that eating gluten again will be for some people, they may be able to eat pizza but they'll be financially in the hole. My dislike for pharmaceutical companies is showing but what they charge for meds is outrageous and I have no doubt it will be the same for this. I also would put money on the fact that if this is marketed, all of a sudden doctors will take celiac disease seriously and everyone that was told they have IBS will be put on the gluten pill!
happygirl
Thanks for sharing this! Great news that numerous areas of research are being investigated (breaking down gluten (this pill) and stopping the autoimmune reaction (Alba Therapeutics))

Research is always needed---the more we know, the better!
Momma Goose
QUOTE (Gemini @ Feb 28 2008, 05:41 PM) *
The problem I have with these articles is that they always state the only treatment for celiac disease is a strict adherence to a gluten-free diet and that the diet is very difficult to follow. I just do not agree with that at all. Once it is mastered, I have not found this diet difficult at all. For me, being able to eat a good, varied diet without getting horribly sick, and done without any meds, is a gift in itself. Telling people who are not Celiac, or those who are undiagnosed, that the diet is difficult produces a mindset that is not good to start with. If you tell someone it's horrible and difficult to follow, it will be for them.

As far as a pill for Celiac, it's not even a consideration for me. I just doubt that a pill will be able to shut off the autoimmune reaction to the point where there will be no damage. Plus, I would bet that this medication will cost a bundle, all so people can eat crappy, fast food again? Look at what other meds cost and with the lure that eating gluten again will be for some people, they may be able to eat pizza but they'll be financially in the hole. My dislike for pharmaceutical companies is showing but what they charge for meds is outrageous and I have no doubt it will be the same for this. I also would put money on the fact that if this is marketed, all of a sudden doctors will take celiac disease seriously and everyone that was told they have IBS will be put on the gluten pill!



Quite eliquently spoken! My I shadow your words?
Takala
The diet is not hard. The problem is that food manufacturers insist on using processed grain byproducts as fillers in nearly all manufactured food products where they should not be expected to have that ingredient, and don't want to take responsibility to verify the source of said grain byproducts as to what they really are and where they come from.

This makes the final product somewhat cheaper but it is not healthier and it raises other issues of nutrition (increased hidden starch and carbohydrate content which play around with the insulin resistance and blood sugars) and of accidental cross contamination resulting in potential allergic/autoimmune reactions or even deliberate altering of ingredients to be unsafe.

Instead of insisting manufacturers tell the consumer the truth about what is in the product on the label, they wish to create people who can be treated with pharmaceuticals so they can in turn eat... anything. It is the ultimate drug manufacturer's dream... requiring daily medication to perform a simple biological function such as eating to survive.
pixiegirl
Well we've had this discussion many times about the other drug and I fall somewhere in the middle.

Staying gluten free for me, after years isn't difficult at all however.. some of us are occasionally forced into situations where we have a greater risk of getting glutened then we usually do.

I travel for business, often days at a time and part of my job is dining with clients, its not a perk, its where business is done and so I often have to eat out. Over the years I've gotten good with that too and I'm rarely glutend in restaurants anymore. But on the occasion that I am, I'm terribly sick for days.... and when I'm doing a business trip I have a full schedule I can't spend a week in bed.

And so for me... being able to take a pill once in a while when I feel the risk of glutening might be high would be a terrific help. I'd never start eating gluten again intentionally.

My daughter went to Disney with her dad last week.. of course Disney is great but on a day trip to the beach she ate at Pizzeria Uno (ordered off their gluten-free menu) and got glutened and so for the rest of her vacation she was ill. She would have loved a pill.

So I personally am glad that it seems like we will have these options in a few years.

Susan
debmidge
Well, we'll take a look at how they market it, how the doctors prescribe it and who is taking it and see how it all turns out. It appears to be more of a good thing, than a bad thing if it is emphasized that it's not a subsitute for a gluten free diet. And there could be some "off label" uses of it eventually. I don't think any mature, sane celiac will think that the pill takes the place of the gluten-free diet; nor do I think the drug company will say that either without fearing being sued.

My husband wants to have a pill such as thing as a "back up" plan only.


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