I have been very strict with my gluten-free diet for 2 years even though I am not sure if I have Celiac. I do definitely have Ulcerative Colitis. I am wondering if anyone has been tempted to cheat on their gluten-free diet when visiting a foreign country. I really want to immerse myself in foreign cultures when traveling without having to worry about what I am eating. Is it that bad to cheat on a diet once every couple of years when leaving the country? Unfortunately, my doctors don’t seem to have any strong opinions on this when I ask. Here is my situation...
Two years ago, I went to the doctor because I was having severe stomach pains, blood in my stools and bloating. I had suffered with these symptoms for several years, but no one could figure out what was wrong. Fortunately, I moved to a new city for a job and got a new physician who suggested I get a blood test for gluten sensitivity. It came back positive. Assuming I had Celiac, she sent me to a gastroenterologist for colonoscopy and endoscopy biopsies to confirm. The Celiac biopsy came back negative (no damaged villi) but they found Ulcerative Colitis in my lower intestine. This is where things got really confusing. The gastroenterologist said because I had no damaged villi, I did not have Celiac. She also said because my diagnosis was Ulcerative Colitis and not Celiac, I did not have to follow a gluten-free diet. However, that early blood test did show a positive result for gluten sensitivity, so my primary care doctor recommended I still try the gluten-free diet. I started a strict gluten-free diet immediately and my Ulcerative Colitis symptoms were greatly reduced, and I felt better. However, even on a strict gluten-free diet, I still experience colitis flare-ups once in a while, including one that sent me to the hospital last summer. After the hospitalization, I started taking meds for the Ulcerative Colitis permanently. However, I still stick to a gluten-free diet because it does make me feel a lot better.
Still, since I don't have an official diagnosis of Celiac, I am wondering if I am being too strict with myself on the gluten-free diet and missing out on some great food experiences. As I said, I have no intention of eating any gluten when home, but I sure would love to sample foreign cuisine with my hubby when traveling out of the country every year or so. I did cheat on my gluten-free diet once at an out-of state conference 1.5 years ago. I was new to the diet and hadn't planned ahead adequately. I had no transportation to get off-site to a grocery store or gluten-free restaurant so I just ate the conference meals. No huge ill effects other than a bit of bloating and minor stomach pains a week later which quickly resolved when I went back to gluten-free.
Any thoughts on eating gluten during foreign travel in my situation?
) we can take more trips!