Hello all

I finally tested myself thru Enterolab and here are my results. I am not taking this as my offical diagnoses, but it helps me to understand what is going on with me.

Fecal Antigliadin IgA 21 units Normal <10 units

Fecal Antitissue Transglutaminase IgA 13 units Normal <10 units

Qunatitive Microscopic Fecal Fat Score <300units Normal range <300

Fecal anti-casein (cow's milk) IgA antibody 12 units Normal <10

HLA - DQB 1 Molecular analysis, Allele 1 501

HLA - DQB 1 Molecular analysis, Allele 2 501

Serologic equivalent HLA - DQ 1,1 (subtype 5,5)

Ok so I have two copies of a gene that predisposes me to gluten sensitivity. Having two copies of a gluten sensitive gene means that each of my parents and all of my children will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and ther resultant immunologic gluten sensitivity may be more severe.

Ok from what I can understand on this I don't have the main gene for celiac spruce but I have 2 copies of the main gene for the sensitivity it that what I am understandingn that I got from both of my parents?

Is being gluten sensitive almost the same as have the actual disease or is it just a step down from the disease itself. Is that why if I eat the same gluten thing one time it affects not at all and I may have that same exact glutne thing and I have a full blown affect on me.

Please give my your responses

donna

I just wanted to point out that Enterolab says that ALL genes except for DQ4 (found in Asians) are gluten intolerant genes. So, pretty much everyone will have 2 gluten intolerant or celiac genes unless they are Asian.

No I am not asian

No, not all have gluten intoelrance genes, some have celiac genes.

The DQ1 gene you have is associated with neurological problems. You probably won't find intestinal damage (although sometimes some people have it anyway, rarely) but you may have a lot of neurological symptoms like brain fog, ataxia, seizures, depression, anxiety, etc. The Gluten File has more info about this.

I do get brain fog, tired alot, can't concentrate no energy when I am eating foods with gluten in it. And on top of that I will get either D or C but that does not hit until the next day. Sometime sooner

Ok so what am I supposed to do with this, watch what I eat and ovoid Gluten sometimes, don't worry about the idea of not eating gluten free and eat gluten, and hope for the best.

donna

Right, that is what I said ... essentially everyone has 2 gluten intolerant or celiac genes.

If you get better gluten-free, then eat gluten-free. If your symptoms do not entirely clear up on the gluten-free diet, then start looking for what else might be wrong.

Sometimes the gluten intolerance is secondary to another condition. Mine was secondary to Lyme Disease and once I treated the Lyme, the gluten intolerance went away.

Honestly it sounds like you should avoid gluten period. Unless you want to get cns problems (including depression or worse and short term memory loss and later on dementia) and quite possibly glaucoma, restless leg syndrome, insomnia, weak joints as you age and the rest , not to mention poor health in general and risking becoming more allergic to your foods and general environment.

Well, if you want to feel well and lose the symptoms, I'd recommend treating this just as if you had a celiac diagnosis. There's a lot we don't know about celiac disease versus gluten intolerance but as far as I'm concerned, I'm treating them exactly alike. At least give it a good honest try for a few months and see if your symptoms clear up.

I feel great on the Gluten free diet, It helps alot with my bathroom issues, neurological issues, and even in the bedroom area.

I totally understand that the diet helps with everything, I have even lost weight with the diet. I had gotten up to 160lbs and on my 4'11" frame that was a little too much for me to weight.

So I know that the diet helps, it is expensive but it is worth it in the long run,

donna