Help - Search - Members - Calendar



How Long Does Dd Need To Be Glutened Before Blood Test?
Gluten-Free Celiac Disease Forum at Celiac.com (Home) > Celiac Disease Gluten-Free Diet Forum at Celiac.com > Celiac Disease - Pre-Diagnosis, Testing & Symptoms
Hopefulmama
DD who is 2.5 years old has been off of gluten for 1.5 months. She has shown signs of improvement on the diet. That is enough for me, but not for DH. So we decided to get the blood test done. I know that it is not always accurate. How long should she be back on gluten to get the most accurate results? I forgot to ask her ped. today. I will call her tomorrow, but thought I would ask here also. Her ped. said that there are many false positives to the test, but not many false negatives. Is that true? Thank you for any and all help and input.
HAK1031
other way around...many false negatives (especially in kids) few false positives. Unfortunately pediatricians (and even gastroenterologists often don't know a whole lot about celiac). Please, PLEASE don't put her back on gluten. I speak from experience, it is absolutely miserable. Is it really that important to your DH that he must make your daughter so awfully sick? And it's a long time that you need to go back too, at least 6 weeks. While it is vital that your DH be on board with the diet, your daughter's welfare should come first.
lizard00
I couldn't agree more with the previous post. To even hope for a valid blood test, you are looking, like HAK said, at LEAST 6 weeks, but in reality, closer to 2.5 to 3 months. And what would happen if her test came back neg? Would your husband throw away the dietary response and put her back on gluten? Do you think he would would go for something like Enterolab, which doesn't base their results on IgA? The problem with IgA based tests is that children are notorious for producing low amounts of IgA, which then skews every IgA based test. Enterolab does stool testing, and you do not have to be consuming gluten to get an answer. They also do genetic testing. I have never used them, but many on here have, and I'm sure could give you some advice. I hear some insurances even pay for it. Always a bonus biggrin.gif
Ursa Major
Those blood tests are notoriously unreliable in children under six at the best of times. But with your daughter having been on the gluten-free diet for that long, she has probably completely healed by now, since children heal very fast.

What a terrible idea to destroy her villi again and make her possibly deathly ill, just to confirm what you already know!

From what I hear she would have to be eating the equivalent of 4 slices of bread a day for at least three to six months to MAYBE get a positive test result. It might take up to a year to do enough damage to get a positive (and even then it may not happen, because she is so young).

I agree with trying the Enterolab testing instead. Their tests are accurate up to a year after starting the gluten-free diet and will give you the answers you need to convince your husband.



please click here.