I'm just wondering how many people have night sweats. I have them mildly every night (only since Celiac's began). they have gotten better since going gluten-free (when I get golutened, I literally soak the bed). I'm wondering if they go away eventually or if there's a supplement I should be taking that might help. I'm only 38 and my doctor assures me it's not menopause.

Berneses,

Have you had your cholesterol checked? When my daughter was younger (30's)
she had them and got tested and found her cholesterol was elevated, she changed her diet and her numbers dropped.

No- I'm actually having it checked this week. That's good to know. Thanks!

I used to get them so bad I had to put a plastic cover on my mattress and would wake up in a puddle of sweat an inch or more deep . Since going gluten-free I haven't had them at all except for one time I got glutened.

Yes!Before going gluten-free my hubbie used to get them terrible!
He would have to get up and change his t-shirt and put a towel on the mattress to lay on.Since going gluten-free it's only happened a couple of times,nowhere near as bad though.

I got them ALL the time before I was diagnosed. Since being gluten-free (1 1/2 years) I do not get night sweats anymore.

Thanks Everyone- it helps to know all this! Beverly

A couple of years ago I got them every once in a while...But I never connected them to being Glutened!
However, looking back that was probably the reason.

Good topic Berneses!

Thanks! I get them so bad when glutened but I also get them mildly on a regualr basis and I'm just trying to figure it all out!

I have them all the time. Bloodwork shows that my hormone levels are changing with perimenopause, so that is what causes mine.

Hugh, that's interesting... I've never had full-blown sweats perhaps, but I always get hot at night, while my husband is on the other side with a heated blanket. I don't get hot during the day though...its weird.

Please see your gyno, I started perimenopause at about your age and by 41 my periods had stopped. I was told it (the peri) was 'in my head', just like my IBS, fibromyalgia and incontinence. Everything has resolved in the 2 years since diagnosis and my gyno told me he sees signs my periods may start again. (at 48!) Stay gluten-free and talk to your doctor.

Thanks- that's good to know as I'm 37 and haven't had kids yet. But lately, I've noticed something interesting. I've been house sitiing for the last three weeks and they have much lighter bedding (I have a light down comforter at home but maybe it's too much- I used to be cold ALL the time before I went gluten-free) and I haven't been sweating so I think it's time to buy some new bedding and see what happens. But you're right, I should see my gynecologist because I don't want to find myself in a situation where I CAN"T have kids. What exactly did you experience during perimenpause? You can email me anytime.

Yes, before going gluten-free and now when glutened.

Ummm, this is very interesting. I went through a bad spell of sweating during the day and night that ended about a week ago. I never put it down to gluten though. I am only 8 months off a one year taper off of a 25 year use of antidepressants and benzodiazapines, and 55 years old, so didn't know if it was benzo w/d or menopause. Who knows. But I will surely keep track of my gluten intake and watch the sweating thing. I also have horrible problems with insomnia, and have for years, and never put it down to gluten either. I live in Northern Canada, and have a terrible time finding gluten-free products, have to stick pretty much to meat and potatoes. It seems that gluten is in everything.

On the subject of withdrawing from benzos. For any of you out there who are using Ativan or any other benzo for sleep, PLEASE PLEASE, be careful. They are so very addictive, and the w/d is hell on earth. I will never touch another one as long as I live. They almost cost me my life.

Deb

I live with hot flashes and night sweats. They went away for a while, however, are back with a vengence, worse than before.

Marshlakemom- Yep, I recently cut down on a benzo and at first it wasn't so bad but then I got to a certain dosage and I cut down just .25 mg and had horrible muscle spasms through my entire body so i stopped cutting down for now. They do their job, but getting off is next to impossible.

I've had night sweats as long as I can remember (probably had celiac disease too, but wasn't diagnosed) It doesn't really bother me as much because I'm used to it, but my husband won't let me get near him when I sleep because he says I'm too hot. In fact he says he can tell when I'm starting to fall asleep because I "pre-heat" The weird thing is the only other person I've talked to with the same issue is my mom. She refuses to get tested but I really think she should. (She has multiple celiac disease symptoms). I guess my dad has the same complaints about her when she sleeps.

Sounds familiar- my husband can suck the curtains off the windows with his snoring (his whole family- try going away with them for aweekend! ) but he usually comes to bed later than me and for some reason his snoring doesn't bother me. But he says that when he climbs into bed he can literally feel the heat coming off me.

It's been much better lately since I lightened up the blankets and keep the fan on me. My doctor says I'm OK (saw her Friday) just sometimes as we get older our temperatures start fluctuating. It's only perimenopause if there are other symptoms like changes in menstrual cycle, mood swings, hot flashes during the day, etc and now that it seems to be subsiding, I'm less concerned.

BERNESES - I had the same problem. It was my THYROID out of wack from being sick to other things. Now I know can't do corn, potatoes, or rice. Took 4 years to find out and did majr damage to colon and etc.

BERNESES have your THYROID LEVELS checked. You might be suprised...

Oh my gosh! You have been through so much. You are surely a strong person.

Thanks for the advice. I did have my thyroid checked and it was fine. My primary care just sid sometimes we go through periods where we are hotter at night than others and actually, it's stopped (except when glutened). Thank God! It was pretty horrible for awhile there. Thanks, B

Hi Everybody

My sweats are just awful, they come during the day as well. This has been going on now for about 6 weeks, and it is driving me nutso. I went through a entire year tapering off of benzodiapines, and thought I was through the worst of it. I went through absolute hell, thought I was going to die. If any of you are any sort of benzo, please consider getting off by doing a very slow taper. You will hit tolerance to it eventually, and that is a real nightmare. That is what happened to me. Then I HAD to start a taper. My benzo forum tells me the sweating is quite common in post benzo tapering, but I am also wondering if it is a mixture of benzo w/drawal, gluten or maybe the horrible MENOPAUSE. I thought I had gone through menopause, but now I am wondering if maybe I was just in perimenopause. Took HRT for several years, and I don't remember having these horrible sweats. I had a hysterectomny years ago, so can't use my menstual cycle as a guide to perhaps my entering into menopause. Think I will just keep it a a bit more time and see where this takes me. I have been very diligent in watching my gluten intake for about three weeks now, so don't really think it is gluten. My insomnia has been a problem for me for over twenty years, and see no improvement in it at all. I sometimes get absolutely zero sleep for days on end, and most nights I will get maybe 3 hours intermitently.

Any opinions anybody.

Deborah

Deborah- You should talk to your primary. There are plenty of good sleep meds you can take that are not benzos. I took one (let me think- I've been on so much crap I can't remember the name)- Ahh... trazodone was it and it worked well. Some of the newer ones like Ambien and Lunestra are supposed to be good too. You NEED sleep! Really.

Ms SillyYak Screwed- Just had my thyroid levels checked again on Tuesday as I'm still getting sick and have had my period three times in the last six weeks. Ugh! PMS times 3. Just what I need! I'll keep you posted. Thanks for all the advice, Beverly

Yeah....I got crazy night sweats all the time. I would wake up totally soaked, hair, clothes, sheets, pillows...everything. It was like someone poured a bucket of water on me. It hardly happens now that I changed my diet. I don't know if I have celiac disease yet but the night sweats return the same time other symptoms return...probably when I've had gluten. I sometimes get numbness in my hands, arms and feet along with the night sweats. It sucks to wake up and have to change clothes all the time .
-Rachel

I believe there is a very strong link between having gyno hormones and thyroid hormone working properly.

I was given a double dose of HRT by accident by my gyno doc. It threw my body in to major shock.

I stopped HRT at the same time I developed Celiac and as a result my thyroid problem now. I eat strict gluten & dairy free for 4 years (I'm so intolerent I have seizures) However, I did eat CORN, RICE and POTATOES okay. Then with major stress bla bla bla stressed me out totally. I thought I was doing okay then out of nowhere B-A-M! It came back and hit with a vengence this time. No more CORN, RICE and POTATOES. I'll really miss you... Bye Bye! Since, I have developed more and more food allergies with time. I wonder how I can thrive?

Is it only woman, or are men experiencing the night sweats problems?

It's not just the ladies that get the night sweats!
Pre-diagnosis my dh suffered terrible from these,they were bad-he used to have to get up and change and put a towel down on the bed.Soggy pillows-the works.
Only gets them occasionally now.

What is dh?

Husband!

Well now I'm frightened. I'm 23 and have all these problems. I knew it was hormonal, but just figured it was kinda normal.

Kris,

All these symptoms can be caused by an overactive thyroid as well. I had all those sypmtoms due to thyroid issues.
-Rachel

I'm 29 and lately I've been getting night sweats a LOT. It sucks cus' after I wake up I'm freezing cold while the sweat condenses off my body. I have to get up and change and then the bed is all wet-ick!!
I never really had this before except sometimes during the winter when I wore too much to bed and had a huge blanket on me.
It's hot in Phoenix but cool in our house and i only sleep in shorts a tshirt and there's a fan blowing on me.
I don't get why I'm getting this but it is very annoying.

Parasitic infections cause night sweats. What other symptoms do you have?

general Celiac symptoms- I was tested for parasites when this whole thing began and nothing showed up. They seem to have let up quite a bit but I have an appointment with my primary tomorrow and my OB?GYN Friday (lucky me!). Beverly

I have been having the same thing since I developed the Celiac symptoms. I go through bouts where I am freezing during the day (I'm pretty sure it's when I get gluten in my system) and sweat horribly at night. last night I woke up three times to change my shirt then finally had to change the sheets. I've had my thyroid tested multiple times and it always comes back fine. It has improved since I went gluten-free but it still happens so I'm trying to see if there's a pattern to it. Lactose maybe? I don't know. I think I need to be tested for more allergies/intolerances. Hang in there and talk to your doctor- the squeaky wheel gets the grease! Best, Beverly

Since 1993 when I was "inexplicably" sick. I've obviously had celiac ever since, but only got diagnosed two years ago.

I from excessive covers to stay warm to sleeping on top of the covers and then back under several times a night.

It is wholly unrelated to whether I get gluten or not.

WOW! I think this is the most interesting post I have read so far about celiac disease. I am so surprised that this seems to be a trend with everyone. I never connected it. I started getting hot flashes about 5 years ago, and thought it was because I had gained weight after having my kids. I have them during the day mostly, but I have woken up at night recently (to go to the potty) and I felt I was burning up. Sure enough, I took my temperature, and I had a fever. I didn't feel cold like you do when you are sick and have a fever. I think my blood pressure might have been high. I suggest having it checked too if you are experiencing hot flashes. It's one of those overlooked things... that's why they call high blood pressure the slient killer.

Sonja

So do I...

I am 48, though, and have thought that the night sweats were just part of what to expect now...

Anyone try a soy supplement yet?
I am thinking of trying Revival.



I think I am perpetually dehydrated now, too, due to the night sweats -
I wake in a pool of water - I have even put a waterproof liner under my sheets to protect my new tempurpedic mattress.


I will have to get my thyroid checked, leave the down comfortor off, and not use valium...I hardly ever use it, but I do take only 4 mg now and then for sleep...
I will have to read up on the benzos...

Thanks to all for sharing.
I purposefully avoided reading this thread before, but finally decided that I need to do something about the sweats - my boyfriend stayed over last night, and I woke in 'the pool' two times...it's not only draining on me, but disruptive for him, too...

Gina

Soy is a huge problem for me. My hair falls out in gobbs.

Soy is bad for people with Thyroid problems. It's in the legume family.
Big NO NO!

I find that since I came down with Celiac, alcohol causes me to have nightsweats. If I have just one cocktail, I sweat terribly, mostly from my neck. If I don't drink, they are very minor.

I to have night sweats, but recently they have only been from the waist down, I can't really explain it. I can be laying on the couch with a blanket with my legs exposed and the bottom of my feet are "wet" as well as my legs. this is new to me so I can't say if it is related to celiac.
Susan

I used to get nightsweats. The pattern was require plenty of bedcovers to get warm enough to sleep, then wake up in early hours of the morning extremely hot and sweating profusely. Would need to get out of bed cool down with my shirt off, then go back to bed and get some sleep.

The dissappearance of the nightsweats coincided with clearing candida out of my intestines. I posted on this subject on the related disorders forum.

I was able to get rid of the nightsweats long before I realised i was gluten intolerant and went gluten-free, so the two things are separable. However theoretically they are linked - having a gluten damaged digestive/intestinal system would make me more susceptible to candida.

Being starved of energy has meant that during the day i'm most likely to be cold. Being cold in the day has persisted for the last 10 years or so.

cheers,

Mike

That makes a lot of sense! I've noticed when I am able to eat more, I am less cold. i am a lso wondering about candida as well.

i find that if i can digest a decent amount of protein then that keeps me warm better than a pure carb meal. The problem is that my system takes a long time to digest protein.

A couple of other symptoms that went away along with the dissappearance of the main candida symptoms were:

1. aversion to perfume and cigarette smoke. I still don't like cigarette smoke or the smell of strong perfume but nowhere near the intense dislike that i used to have.
2. aversion to crowds eg in a crowded shopping area.

I know no 2. sounds a bit weird, but its a definate benefit to be able to enjoy shopping with my wife - especially when I'm on holiday like today in crowded Bangkok.

cheers,

Mike

I get nightsweats from anything that turns into sugar in my system-carbs. A friend of mine who is not celiac used to get terrible nightsweats until he quit drinking coffee. Try eliminating sugar and carbs for a few days and if that does not work then try eliminating caffeine. good luck.

I too have had insomnia for over 40 years and brain fog, bloat, etc. and when I read The Yeast Connection was sure it was candida, not celiac. Carbs and sugar not gluten is what causes all these things for me, and I could go weeks without sleep as a teen. People say you can't but I learned to go into a daydream state at night, just never fell asleep. Had no idea it was french fries and candy bars that was causing it and unless I have lots of fiber with carbs to slow the conversion to sugar I will still get nightsweats or just not fall asleep. I don't even know what it is like to deep sleep.

Oh my God- that's horrible! That can't be good for you.

Well, I had an eye-opener this weekend. I realized I do not sweat nearly as much at other places. My husband and I went away for the weekend for our anniversary and I didn't sweat at all. I had noticed this too when I visited my sister, in-laws etc. Got back Sunday night to our place and sweat horribly.

So, I'm down to two things (well- three actually- I'm convinced this has something to do with where I live- it's possessed and my landlord feeds hundreds of pigeons!). My husband and I have both noticed that I feel better when I am not at home. So, yesterday I bought a new comforter- not down- just cotton. No night sweats. Also, I am switching my cats over to a gluten-free cat food and a different litter. I've noticed that I feel OK when I wake up in the a.m. I, but after I clean the cat box and feed the cats, I get nauseous.

I've also noticed that when I take phenergan (a drug that was prescribed for my nausea but also has an antihistamine in it) I feel MUCH better. I'm wondering if I have a wheat allergy on top of a gluten intolerance. It might explain why I am so sensitive to it. I'm going to talk to my doctor this week.

Berneses, I don't know if this helps at all but for years Drs. said my nausea and dizziness was because of sinus problems and allergies. The thing was I never had any classic nasal symptoms but I don't think they could come up with anything else! (these 2 symptoms were the main ones for me until 2 yrs. ago when the celiac disease came on big time.) Anyway, I was put on antihistimes, antibiotics, and steriod injections which it turns out I didn't need and now I'm allergic to all but one class of antibiotic but the point of this is that when I took the antihistimes, I'd find that my nausea went away most of the time. I actually took Claritan for almost 10 yrs. straight to try and keep my stomach at bay. Back then I also had night sweats which I don't have anymore-I'm 5 mo. gluten-free. When I read your post, I saw some similarities==for the life of me its all so confusing

I know- I'm so confused too. I'll let you know what I "find out". Ugh.

I have had nightsweats for years, and have had "IBS" (undiagnosed) for about 15 years.

I have noticed that I have nightsweats when I overeat, or just before and during my period - so for me it could be linked to gluten, and it also seems to be linked to hormones. My doctor tested me for perimenopause about two years ago (I'm now 33) and that showed nothing.

I've never been tested for Coeliacs, but I have been diagnosed as having Candida by an alternative therapist. I'm getting some bloodwork done on Monday though to test for gluten intolerance, as my therapist says that now my candida is cleared up I still have a wheat intolerance.

I definitely think nightsweats are food related (at least partly).

My son had both these symptomes,and both are much better now.